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37.4 Definitions: quality of life, health, and health-related quality of life
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Published:July 2018
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Abstract
The traditional objective and often physiologically or clinically focused outcome variables fail to capture the voice of the patient and their subjective experience of how heart failure and its treatment affect their life. Health-related quality of life is an established outcome measure for assessing the subjective impact that a disease with its symptoms and consequences has on the quality of life of the affected individual. There are a number of validated generic and disease-specific instruments for measuring health-related quality of life that are getting more and more commonly used in research, quality assessment, and clinical practice. Compared to other chronic illnesses, the impact of the heart failure condition on quality of life is more prominent. The families of patients with heart failure are also affected, with their quality of life also negatively influenced. Interventions that are improving health-related quality of life in patients with heart failure are pharmacological treatment, a structural follow-up, psychoeducational interventions to support self-care, and exercise training. The goal of all heart failure treatment and care is for the patient to both live longer and live better. Despite improved treatment the prognosis for many patients with heart failure is quite poor and many patients are highly symptomatic with decreased functional status and quality of life. Many patients attach more weight to quality of life over longevity, which further supports the belief that patients with heart failure are willing to trade time for an improvement in health status.
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