
Contents
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Introduction: The Shift toward Patient Involvement Introduction: The Shift toward Patient Involvement
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Historical context of patient participation and partnership Historical context of patient participation and partnership
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Approaches to involving patients Approaches to involving patients
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The Patient Centered Approach The Patient Centered Approach
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Patient-Centered Communication Patient-Centered Communication
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Medical decision-making models Medical decision-making models
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The importance of patient preferences The importance of patient preferences
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The Rise of Shared Decision-Making Theory The Rise of Shared Decision-Making Theory
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The shift toward shared decision making The shift toward shared decision making
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Shared decision making conceptual definitions Shared decision making conceptual definitions
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Presidents Commission Model Presidents Commission Model
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Charles et al.’s Conceptual Framework Charles et al.’s Conceptual Framework
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Other Prominent SDM Models Other Prominent SDM Models
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Recent Integrative Models Recent Integrative Models
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Growth and popularity of SDM Growth and popularity of SDM
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SDM in clinical practice SDM in clinical practice
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Patient and Provider Perspectives toward Patient Involvement Patient and Provider Perspectives toward Patient Involvement
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Patient preferences for involvement in medical decision making Patient preferences for involvement in medical decision making
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Demographic Factors and Preferences for Involvement Demographic Factors and Preferences for Involvement
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Illness-based determinants of involvement in medical decision making Illness-based determinants of involvement in medical decision making
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Provider preferences for involvement Provider preferences for involvement
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Provider Perceived Barriers to Implementation of SDM Provider Perceived Barriers to Implementation of SDM
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Outcomes of Patient Involvement Outcomes of Patient Involvement
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The relationship between patient involvement and patient outcomes The relationship between patient involvement and patient outcomes
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Patient satisfaction Patient satisfaction
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Cognitive outcomes Cognitive outcomes
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Adherence Adherence
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Affective outcomes Affective outcomes
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Health-related outcomes Health-related outcomes
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Interventions and Their Evaluations Interventions and Their Evaluations
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Provider communication-skills training Provider communication-skills training
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Communication-Skills Training Formats Communication-Skills Training Formats
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Decision aids Decision aids
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Other patient involvement interventions (e.g., coaching and question prompt lists) Other patient involvement interventions (e.g., coaching and question prompt lists)
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Barriers to Implementation of Patient Partnerships Barriers to Implementation of Patient Partnerships
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Patient barriers Patient barriers
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Provider barriers Provider barriers
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Systemic barriers Systemic barriers
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Implementation of Patient-Centered Care and Shared Decision Making Implementation of Patient-Centered Care and Shared Decision Making
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Developing legal or professional standards Developing legal or professional standards
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Highlighting goals for patient partnerships Highlighting goals for patient partnerships
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Implementing financial incentives for patient partnerships Implementing financial incentives for patient partnerships
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Implementing health-care provider communication training Implementing health-care provider communication training
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Providing freely available information to improve patient choice Providing freely available information to improve patient choice
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Advocating for consumers and monitoring patient experiences Advocating for consumers and monitoring patient experiences
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Discussion Discussion
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Areas for future research Areas for future research
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Conclusion Conclusion
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References References
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6 Partnering with and Involving Patients
Get accessRebekah C. Laidsaar-Powell is a research coordinator and Ph.D. candidate at the Centre for Medical Psychology and Evidence-based Decision-making (CeMPED), University of Sydney.
Stella Bu is a research assistant at the Centre for Medical Psychology and Evidence-based Decision-making (CeMPED), University of Sydney.
Kirsten J. McCaffery is Associate Professor in Clinical Decision Making, Screening and Test Evaluation Program (STEP), School of Public Health, University of Sydney.
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Published:16 December 2013
Cite
Abstract
The purpose of this chapter is to explore the nature and significance of patient partnerships and participation. It begins by providing an overview of the historical context and development of patient partnerships, and explains some of the approaches to patient participation such as patient centeredness. A discussion of different approaches to medical decision making follows, with a particular focus on shared decision making, a gold standard approach to partnering with patients. It then explores patient and provider perspectives toward patient involvement. This chapter discusses the relationship between patient involvement and patient outcomes. Then, it focuses on interventions to improve patient partnerships such as communication-skills training and decision aids. A discussion of the barriers to patient involvement follows, before detailing some of the past and current implementation initiatives designed to increase patient partnerships.
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