Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts
Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts
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Professor of Social Medicine and Epidemiology
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Abstract
Illness narratives, patients’ stories about their experiences of illness, have gained a reputation as a scientific domain in medicine in the last thirty years. Patients’ stories about living with an illness, diagnostic procedures and treatments, encounters with medical institutions and its impact on their private and social life have been considered as an important access to their meaning-making and coping endeavours. They also play an important role in doctor-patient communication and the development of a healing relationship. This book aims at sensitizing professionals who use illness narratives in the field of medicine for their problems, challenges, and chances. In what ways should scholars of narratives respond to such uses? We argue that the use of narratives in applied contexts raises many questions about what kind of tools they are and what epistemological foundations, communicational properties and pragmatic effects they comprise when they are shifted from research material to clinical or educational and instructive instruments in various domains. This raises ethical concern and reflections. The book brings together scholars from various disciplines across clinical and theoretical fields. They give impressive examples how illness narratives can be used in many practical domains, and reflect on the chances as well as on the methodological or epistemological assumptions and challenges which are inevitably connected with the use of narratives as clinical, educational, or informative tools.
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Front Matter
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Section 1 Introduction
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Section 2 Methodological and epistemological challenges
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2
Illness narratives in practice: Which questions do we have to face when collecting and using them?
Gabriele Lucius-Hoene and others
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3
The researchers’ role in re-constructing patient narratives to present them as patient experiences
Janka Koschack andWolfgang Himmel
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4
Stories, illness, and narrative norms
Lars-Christer Hydén
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5
Choices of illness narratives in practice: Applying ideas of sampling and generalizability
Thorsten Meyer andMargret Xyländer
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2
Illness narratives in practice: Which questions do we have to face when collecting and using them?
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Section 3 Ethical and communicational aspects of using narratives in medicine
Hille Haker -
Section 4 Narratives in psychotherapy, rehabilitation, and vocational training
Sabine Corsten andFriedericke Hardering -
Section 5 Narratives in training of communication and empathy
Alexander Kiss andClaudia Steiner-
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Using narratives for medical humanities in medical training
Alexander Kiss andClaudia Steiner
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12
The ‘narrative spirit’: Narratives for training doctors in Korea
Yeonok Jeoung and others
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13
How to use illness narratives in medical education: First teaching experiences with the German DIPEx website project
Alexander Palant andWolfgang Himmel
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14
Using patient narratives as source material for creative writing
Paula McDonald
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15
Engaging the vulnerable encounter: Engendering narratives for change in healthcare practice by using participatory theatre methods
Chris Heape and others
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16
Drawing on narrative accounts of dementia in education and care
Joyce Lamerichs andManna Alma
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11
Using narratives for medical humanities in medical training
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Section 6 Narratives in diagnostics
Elisabeth Gülich-
17
Using illness narratives in clinical diagnosis: Narrative reconstruction of epileptic and non-epileptic seizures and panic attacks
Elisabeth Gülich
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18
Structural dream analysis: A narrative methodology for investigating the meaning of dream series and their development in the course of psychotherapy
Christian Roesler
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17
Using illness narratives in clinical diagnosis: Narrative reconstruction of epileptic and non-epileptic seizures and panic attacks
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Section 7 Narratives in decision making
Christine Holmberg -
Section 8 Narratives in healthcare
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21
Understanding and using health experiences to improve healthcare—examples from the United Kingdom
Lisa Hinton and others
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22
Illness narratives as evidence for healthcare policy
Susan Law and others
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23
When public and private narratives diverge: Media, policy advocacy, and the paradoxes of newborn screening policy
Rachel Grob andMark Schlesinger
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21
Understanding and using health experiences to improve healthcare—examples from the United Kingdom
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Section 9 Illness narratives in the media
Eleonora Massa andValentina Simeoni-
24
Pregnancy 2.0: A corpus-based case study for the analysis of illness narratives online
Eleonora Massa andValentina Simeoni
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25
Changes in authenticity: Perceptions of parents and youth with ADHD of the effects of stimulant medication
Erez C. Miller andAmos Fleischmann
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26
Illness narratives in political communication: Instrumental, institutional, and social functions of political actors’ public illness accounts
Matthias Bandtel
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24
Pregnancy 2.0: A corpus-based case study for the analysis of illness narratives online
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End Matter
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