
Contents
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2 Illness narratives in practice: Which questions do we have to face when collecting and using them?
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3 The researchers’ role in re-constructing patient narratives to present them as patient experiences
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Introduction Introduction
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How do we know what matters to patients? How do we know what matters to patients?
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The value of narrative The value of narrative
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Secondary analysis Secondary analysis
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Service improvement ‘trigger films’ for experience-based co-design Service improvement ‘trigger films’ for experience-based co-design
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‘Accelerated’ experience-based co-design (AEBCD) ‘Accelerated’ experience-based co-design (AEBCD)
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Developing training materials based on patient narratives Developing training materials based on patient narratives
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Potential drawbacks to using health narratives to guide healthcare improvements Potential drawbacks to using health narratives to guide healthcare improvements
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Notes Notes
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References References
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21 Understanding and using health experiences to improve healthcare—examples from the United Kingdom
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Published:October 2018
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Abstract
This chapter explores the variety of ways in which people’s narrative accounts of their health experiences can be harnessed to inform practice, service development, and health policy, as well as a more traditional research agenda. The case has been made that collecting data on patient experience as an activity in isolation is not enough. Health experiences should be used to improve care. But what are the most effective ways to achieve this? This chapter presents examples of projects conducted in the United Kingdom where patient narratives collected as part of the Healthtalk project (www.healthtalk.org) were used for health service improvement. Examples include secondary analysis, and co-design projects using experience based co-design and an accelerated approach to co-design.
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