
Contents
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2 Illness narratives in practice: Which questions do we have to face when collecting and using them?
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3 The researchers’ role in re-constructing patient narratives to present them as patient experiences
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Introduction Introduction
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Narrative norms Narrative norms
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Temporal coherence Temporal coherence
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Event organization Event organization
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Chaos narratives Chaos narratives
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Discussion Discussion
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References References
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21 Understanding and using health experiences to improve healthcare—examples from the United Kingdom
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4 Stories, illness, and narrative norms
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Published:October 2018
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Abstract
Collecting illness narratives has become an established way to explore illness experiences. Often both collecting and analysing illness narratives are based on taken for granted narrative norms about how a narrative should look in order to be counted as a narrative and as researchable. Autobiographical illness stories are for instance generally supposed to be coherent and true. Many persons, especially with neurocognitive disorders, have problems living up to and adhere to these narrative norms, thus telling stories that risk being considered as non-stories or as incoherent and fragmented stories. A number of examples of conflicts between narrative norms and illness stories will be discussed. In conclusion, it is argued that researchers must use data collecting methods as well as analytical strategies that allow for alternative ways of telling stories.
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