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J. E. McDonagh, K. L. Shaw, R. Stephenson, N. J. Gray, Are they ready and do we know they are ready? Documentation of medicine management tasks in an adolescent rheumatology clinic, Rheumatology, Volume 53, Issue suppl_3, September 2014, Page iii10, https://doi.org/10.1093/rheumatology/keu269.025
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Introduction: Knowledge and skills in medicine self-management are considered important by both young people and professionals.
Aims: To (i) scope current patterns of medication use among young people with juvenile arthritis as documented in medical case notes (ii) map the current contribution of pharmacy to their treatment and (iii) identify gaps in data collection.
Method: A cross-sectional, retrospective case-note review of 150 young people with inflammatory arthritis aged 11–18 years attending the rheumatology service at a UK hospital was undertaken. Anonymized data was collected using a structured proforma including patient and disease demographics, documentation of medicine-related knowledge and skills, current medication use and pharmacy involvement.
Results: The mean number (s.d.) of medications taken by 128 young people was 2.3 (2.1). Over a quarter of these (35/128) taking ≥4 different types. Over a third (53/150) were on biologics. Pharmacy issues (including local pharmacy involvement) were not identified in any case notes. Documentation of medicine management and assessment of knowledge and competency in relevant areas by professionals was poor eg allocation of responsibility of medication management was documented in only 38.3% (49/128) of notes; confirmation of knowledge of regimen was documented in less than a third of notes.
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