QSPC-04 BRAIN AND SPINE METASTASIS AWARENESS: AN INTERNATIONAL CAMPAIGN TO EDUCATE PATIENTS, PROVIDERS, AND POLITICIANS AND IMPROVE OUTCOMES

Almost any cancer can spread, or metastasize, to other locations in the body, including the brain, spine, or lining (leptomeninges) that all comprise the central nervous system (CNS). Each year, an estimated 480,000 new cases of CNS metastasis are diagnosed in the U.S., making them 5-10 times more common than primary brain tumors. The incidence is increasing as improved treatments for cancers result in longer patient survival, and many treatments do not protect the CNS. Despite the growing incidence and clinically unmet need, there is a lack of understanding among the general population and providers about the frequency and effective treatment options for patients with CNS metastases. To help raise awareness of the unique needs of these patients, and to improve their outcomes, the Duke Center for Brain and Spine Metastasis (DCBSM) has initiated a Brain and Spine Metastasis Awareness Initiative. This campaign seeks to educate the general public, patients, caregivers, providers, and politicians on several topics, including that brain and spine metastases can happen with almost any cancer, distinguishing between primary brain cancer and metastatic (secondary) brain tumors, the need for a different and multi-disciplinary treatment approach, and the availability of dedicated centers and clinical trials for these patients. Increasing awareness of brain and spine metastasis will improve the outcomes and quality of life for these patients, and will help these patients feel “seen.” The campaign will involve educational material developed by the DCBSM and shared digitally though social media and a website (brainspinemetastasis.org). It will also include the use of a new awareness ribbon, designed at Duke. In collaboration with Duke Government Relations and partnering international advocacy and research groups, we will push for U.S. Congressional actions towards designated funding on brain and spine metastasis, as well as proclaiming June National Brain and Spine Metastasis Awareness Month.