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52 Contagion, Identity, Misinformation: Challenges for Psychiatric Ethics in the Age of the Internet
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Introduction: Service Users’ Input to Research in the Twentieth Century Introduction: Service Users’ Input to Research in the Twentieth Century
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Emergence of Service-User-Led Research in the Voluntary Sector Emergence of Service-User-Led Research in the Voluntary Sector
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Different Cultures/Groups with Different Experiences—Are Some Groups “Hard to Reach”? Different Cultures/Groups with Different Experiences—Are Some Groups “Hard to Reach”?
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Ways of Knowing—Competing Epistemologies in Mental Health Research Ways of Knowing—Competing Epistemologies in Mental Health Research
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Different Values in Research Different Values in Research
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Experience-Based Knowledge versus “Objective” Knowledge Experience-Based Knowledge versus “Objective” Knowledge
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Service Users in Research: From “User Involvement” to “User Control” Service Users in Research: From “User Involvement” to “User Control”
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Levels of Involvement Levels of Involvement
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Working Together as Equals Working Together as Equals
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Conclusions Conclusions
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References References
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70 Animal Welfare Considerations and Ethical Oversight of the Use of Animals in Psychiatric Research
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68 Service User Involvement in Research: Ethics and Values
Get accessJan Wallcraft, University of Birmingham
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Published:04 March 2015
Cite
Abstract
This chapter traces the development of service user involvement in research and user-controlled research, from its origins in the early 1990s to the present day where mental health researchers are expected to involve service users. It looks at why service users wanted to be involved in research and their issues of concern, including the effects of treatment, staff attitudes, and human rights. Values in research are linked to the epistemological underpinnings of research, and it is argued that service users’ ways of knowing based on experience are in conflict with mainstream research based on claims of objectivity and neutrality. Service user involvement at all levels from consultation to control is explored with examples. The benefits and problems of working in partnership are explored, and the chapter ends with an assessment of the impact of involvement in research and how it can lead to change.
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