
Contents
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Introduction Introduction
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I. Sequencing the Human Genome as a Global Development Project I. Sequencing the Human Genome as a Global Development Project
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II. The Challenges Pertaining to the Genomic Project in View of Ethical, Legal, and Social Issues II. The Challenges Pertaining to the Genomic Project in View of Ethical, Legal, and Social Issues
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A. Populous Genomics A. Populous Genomics
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B. Tailored Unilateral Life and Health Insurance B. Tailored Unilateral Life and Health Insurance
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C. Cloning and ‘Superficial Resurrections’ C. Cloning and ‘Superficial Resurrections’
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D. Harvesting Body Parts D. Harvesting Body Parts
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E. Prejudging People Based on Personal Embedded Genetic Characteristics E. Prejudging People Based on Personal Embedded Genetic Characteristics
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III. The Global Legal Structure of the Regulation of Genomic Information III. The Global Legal Structure of the Regulation of Genomic Information
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A. Genomic data: as a public good A. Genomic data: as a public good
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B. Transparency B. Transparency
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C. Inclusion of genomic sequencing in an international regulative framework C. Inclusion of genomic sequencing in an international regulative framework
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D. The International Court of Genomics D. The International Court of Genomics
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Conclusion Conclusion
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13 Global Ethical Boundaries of Intellectual Property and Development: The Case of Genome Sequencing
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Published:September 2014
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Abstract
Global Intellectual Property is not only about regulating the protection and movement of IP subject matter. Ethical and regulatory questions pertaining to the impact of knowledge and technology are becoming more prevalent. This chapter deals with one such topic, namely the global challenges that lie ahead for IP and development in the Genomic realm. Genomics impact all mankind and are the result of global scientific collaboration across borders. Genomics signify the interface between: intellectual property, development, and globalization. This chapter focuses on the developmental, legal, ethical, and social challenges and costs pertaining to genomics. The chapter considers the effects that genomics have on individuals and the general population. Specifically the chapter considers the impact on health, insurance, industry, cloning, harvesting body parts, population control, as well as criminal prosecution based on personal genetic characteristics. The chapter proposes a global legal structure pertaining to the collection and use of genomic data.
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