| . | n . | Mean ± SD . | Range . |
|---|---|---|---|
| Age at onset (years) | 23 | 7.8 ± 4.8 | 1.0–15.0 |
| Age at diagnosis (years) | 23 | 12.7 ± 8.0 | 5.0–36.0 |
| Age at operation (years) | 23 | 18.0 ± 8.8 | 6.0–36.0 |
| Disease duration (years) | 23 | 10.2 ± 6.4 | 3.0–28.0 |
| BFMDRS-M (out of 120) | 21 | 71.2 ± 26.0 | 21.0–112.0 |
| BFMDRS-D (out of 30) | 22 | 21.0 ± 5.8 | 9.0–30.0 |
| Barry Albright Dystonia Scale (out of 32) | 21 | 21.0 ± 6.3 | 6.0–30.0 |
| Global quality of life—patient (out of 10) | 16 | 3.7 ± 2.8 | 0–9.0 |
| Global quality of life—caregiver (out of 10) | 21 | 3.0 ± 2.5 | 0–9.0 |
| Care and Comfort Hypertonicity Questionnaire (out of 189) | 17 | 104.1 ± 41.8 | 31.0–177.0 |
| . | n . | Mean ± SD . | Range . |
|---|---|---|---|
| Age at onset (years) | 23 | 7.8 ± 4.8 | 1.0–15.0 |
| Age at diagnosis (years) | 23 | 12.7 ± 8.0 | 5.0–36.0 |
| Age at operation (years) | 23 | 18.0 ± 8.8 | 6.0–36.0 |
| Disease duration (years) | 23 | 10.2 ± 6.4 | 3.0–28.0 |
| BFMDRS-M (out of 120) | 21 | 71.2 ± 26.0 | 21.0–112.0 |
| BFMDRS-D (out of 30) | 22 | 21.0 ± 5.8 | 9.0–30.0 |
| Barry Albright Dystonia Scale (out of 32) | 21 | 21.0 ± 6.3 | 6.0–30.0 |
| Global quality of life—patient (out of 10) | 16 | 3.7 ± 2.8 | 0–9.0 |
| Global quality of life—caregiver (out of 10) | 21 | 3.0 ± 2.5 | 0–9.0 |
| Care and Comfort Hypertonicity Questionnaire (out of 189) | 17 | 104.1 ± 41.8 | 31.0–177.0 |
| . | n . | Mean ± SD . | Range . |
|---|---|---|---|
| Age at onset (years) | 23 | 7.8 ± 4.8 | 1.0–15.0 |
| Age at diagnosis (years) | 23 | 12.7 ± 8.0 | 5.0–36.0 |
| Age at operation (years) | 23 | 18.0 ± 8.8 | 6.0–36.0 |
| Disease duration (years) | 23 | 10.2 ± 6.4 | 3.0–28.0 |
| BFMDRS-M (out of 120) | 21 | 71.2 ± 26.0 | 21.0–112.0 |
| BFMDRS-D (out of 30) | 22 | 21.0 ± 5.8 | 9.0–30.0 |
| Barry Albright Dystonia Scale (out of 32) | 21 | 21.0 ± 6.3 | 6.0–30.0 |
| Global quality of life—patient (out of 10) | 16 | 3.7 ± 2.8 | 0–9.0 |
| Global quality of life—caregiver (out of 10) | 21 | 3.0 ± 2.5 | 0–9.0 |
| Care and Comfort Hypertonicity Questionnaire (out of 189) | 17 | 104.1 ± 41.8 | 31.0–177.0 |
| . | n . | Mean ± SD . | Range . |
|---|---|---|---|
| Age at onset (years) | 23 | 7.8 ± 4.8 | 1.0–15.0 |
| Age at diagnosis (years) | 23 | 12.7 ± 8.0 | 5.0–36.0 |
| Age at operation (years) | 23 | 18.0 ± 8.8 | 6.0–36.0 |
| Disease duration (years) | 23 | 10.2 ± 6.4 | 3.0–28.0 |
| BFMDRS-M (out of 120) | 21 | 71.2 ± 26.0 | 21.0–112.0 |
| BFMDRS-D (out of 30) | 22 | 21.0 ± 5.8 | 9.0–30.0 |
| Barry Albright Dystonia Scale (out of 32) | 21 | 21.0 ± 6.3 | 6.0–30.0 |
| Global quality of life—patient (out of 10) | 16 | 3.7 ± 2.8 | 0–9.0 |
| Global quality of life—caregiver (out of 10) | 21 | 3.0 ± 2.5 | 0–9.0 |
| Care and Comfort Hypertonicity Questionnaire (out of 189) | 17 | 104.1 ± 41.8 | 31.0–177.0 |
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