Table 4.

Joint Trajectories of Burden and Benefits of Caregiving Among Informal Caregivers of Older Adults in the Included Studies

StudyStudy durationCR diagnosisStatistical model for trend(s)Participants in each group, %Measure of burden
(min–max)
Trend(s)
(p-value)
Measure of benefits
(min–max)
Trend(s)
(p-value)
Malhotra et al. (2024)2 yrDementiaGBMTM22.7mCRA (1–5)Stable (NS)GAIN (0–40)Stable (NS)
28.2Stable (NS)Stable (NS)
28.3Stable (NS)Stable (NS)
20.8Stable (NS)Stable (NS)
Quinn et al. (2024)2 yrDementiaGMM72.2RSS (0–60)Stable (NS)PAC (9–54)Stable (NS)
15.2Stable (NS)Decrease (<.05)
12.5Increase (<.05)Increase (<.05)
Wen et al. (2022)2 yrCancerGBMTM38.3mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
20.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
16.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
24.9mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
StudyStudy durationCR diagnosisStatistical model for trend(s)Participants in each group, %Measure of burden
(min–max)
Trend(s)
(p-value)
Measure of benefits
(min–max)
Trend(s)
(p-value)
Malhotra et al. (2024)2 yrDementiaGBMTM22.7mCRA (1–5)Stable (NS)GAIN (0–40)Stable (NS)
28.2Stable (NS)Stable (NS)
28.3Stable (NS)Stable (NS)
20.8Stable (NS)Stable (NS)
Quinn et al. (2024)2 yrDementiaGMM72.2RSS (0–60)Stable (NS)PAC (9–54)Stable (NS)
15.2Stable (NS)Decrease (<.05)
12.5Increase (<.05)Increase (<.05)
Wen et al. (2022)2 yrCancerGBMTM38.3mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
20.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
16.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
24.9mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)

Note: CR = care-recipient; GAIN = Gain in Alzheimer Care Instrument; GBMTM = Group-Based Multi-Trajectory Model; GMM = Growth Mixture Model; mCRA = modified Caregiver Reaction Assessment; mCRA-ce = modified Caregiver Reaction Assessment—caregiver esteem subscale; mCRA-if = modified Caregiver Reaction Assessment—impact of finance; mCRA-ish = modified Caregiver Reaction Assessment—impact on schedule and health subscale; mCRA-lfs = modified Caregiver Reaction Assessment—lack of family support subscale; NS = not statistically significant; PAC = Positive Aspects of Caregiving Scale; RSS = Relative Stress Scale; yr = years.

Table 4.

Joint Trajectories of Burden and Benefits of Caregiving Among Informal Caregivers of Older Adults in the Included Studies

StudyStudy durationCR diagnosisStatistical model for trend(s)Participants in each group, %Measure of burden
(min–max)
Trend(s)
(p-value)
Measure of benefits
(min–max)
Trend(s)
(p-value)
Malhotra et al. (2024)2 yrDementiaGBMTM22.7mCRA (1–5)Stable (NS)GAIN (0–40)Stable (NS)
28.2Stable (NS)Stable (NS)
28.3Stable (NS)Stable (NS)
20.8Stable (NS)Stable (NS)
Quinn et al. (2024)2 yrDementiaGMM72.2RSS (0–60)Stable (NS)PAC (9–54)Stable (NS)
15.2Stable (NS)Decrease (<.05)
12.5Increase (<.05)Increase (<.05)
Wen et al. (2022)2 yrCancerGBMTM38.3mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
20.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
16.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
24.9mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
StudyStudy durationCR diagnosisStatistical model for trend(s)Participants in each group, %Measure of burden
(min–max)
Trend(s)
(p-value)
Measure of benefits
(min–max)
Trend(s)
(p-value)
Malhotra et al. (2024)2 yrDementiaGBMTM22.7mCRA (1–5)Stable (NS)GAIN (0–40)Stable (NS)
28.2Stable (NS)Stable (NS)
28.3Stable (NS)Stable (NS)
20.8Stable (NS)Stable (NS)
Quinn et al. (2024)2 yrDementiaGMM72.2RSS (0–60)Stable (NS)PAC (9–54)Stable (NS)
15.2Stable (NS)Decrease (<.05)
12.5Increase (<.05)Increase (<.05)
Wen et al. (2022)2 yrCancerGBMTM38.3mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
20.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Stable (NS)
16.4mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)
24.9mCRA-ish (1–5)Stable (NS)mCRA-ce (1–5)Stable (NS)
mCRA-if (1–5)Stable (NS)
mCRA-lfs (1–5)Increase (<.05)

Note: CR = care-recipient; GAIN = Gain in Alzheimer Care Instrument; GBMTM = Group-Based Multi-Trajectory Model; GMM = Growth Mixture Model; mCRA = modified Caregiver Reaction Assessment; mCRA-ce = modified Caregiver Reaction Assessment—caregiver esteem subscale; mCRA-if = modified Caregiver Reaction Assessment—impact of finance; mCRA-ish = modified Caregiver Reaction Assessment—impact on schedule and health subscale; mCRA-lfs = modified Caregiver Reaction Assessment—lack of family support subscale; NS = not statistically significant; PAC = Positive Aspects of Caregiving Scale; RSS = Relative Stress Scale; yr = years.

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