| Rank . | Barriers to research participation . |
|---|---|
| 1 | Timing for researchers and survivors doesn’t line up (example: researchers want to study 2 weeks after injury but patients are not in a place to participate) |
| 2 | Lack of understanding of the expected outcome or benefit |
| 3 | Lack of resources to have bandwidth to participate |
| 4 | Unaware that the research is happening |
| 5 | Lack of time |
| 6 | Participants never see the outcome of research |
| 7 | Survivor is focused on their own recovery |
| 8 | Lack of trust in the researchers/healthcare research community |
| 9 | Survivors don’t want to relive the trauma of their injury |
| 10 | Lack of compensation |
| 11 | Research won’t benefit the survivor (their care is over) |
| 12 | Cultural barriers |
| 13 | Research feels exclusive (example: “they don’t want to hear from people like me” |
| 14 | Geographical limitations (distance from researchers) |
| 15 | Language barriers (example: research is done only in English and a survivor that doesn’t speak or read English is unable to participate) |
| 16 | Fear of safety (example: pain or bad outcomes) |
| 17 | Technological limitations |
| 18 | Research is rarely patient-centered |
| 19 | Invasive questions make participation uncomfortable |
| Rank . | Barriers to research participation . |
|---|---|
| 1 | Timing for researchers and survivors doesn’t line up (example: researchers want to study 2 weeks after injury but patients are not in a place to participate) |
| 2 | Lack of understanding of the expected outcome or benefit |
| 3 | Lack of resources to have bandwidth to participate |
| 4 | Unaware that the research is happening |
| 5 | Lack of time |
| 6 | Participants never see the outcome of research |
| 7 | Survivor is focused on their own recovery |
| 8 | Lack of trust in the researchers/healthcare research community |
| 9 | Survivors don’t want to relive the trauma of their injury |
| 10 | Lack of compensation |
| 11 | Research won’t benefit the survivor (their care is over) |
| 12 | Cultural barriers |
| 13 | Research feels exclusive (example: “they don’t want to hear from people like me” |
| 14 | Geographical limitations (distance from researchers) |
| 15 | Language barriers (example: research is done only in English and a survivor that doesn’t speak or read English is unable to participate) |
| 16 | Fear of safety (example: pain or bad outcomes) |
| 17 | Technological limitations |
| 18 | Research is rarely patient-centered |
| 19 | Invasive questions make participation uncomfortable |
| Rank . | Barriers to research participation . |
|---|---|
| 1 | Timing for researchers and survivors doesn’t line up (example: researchers want to study 2 weeks after injury but patients are not in a place to participate) |
| 2 | Lack of understanding of the expected outcome or benefit |
| 3 | Lack of resources to have bandwidth to participate |
| 4 | Unaware that the research is happening |
| 5 | Lack of time |
| 6 | Participants never see the outcome of research |
| 7 | Survivor is focused on their own recovery |
| 8 | Lack of trust in the researchers/healthcare research community |
| 9 | Survivors don’t want to relive the trauma of their injury |
| 10 | Lack of compensation |
| 11 | Research won’t benefit the survivor (their care is over) |
| 12 | Cultural barriers |
| 13 | Research feels exclusive (example: “they don’t want to hear from people like me” |
| 14 | Geographical limitations (distance from researchers) |
| 15 | Language barriers (example: research is done only in English and a survivor that doesn’t speak or read English is unable to participate) |
| 16 | Fear of safety (example: pain or bad outcomes) |
| 17 | Technological limitations |
| 18 | Research is rarely patient-centered |
| 19 | Invasive questions make participation uncomfortable |
| Rank . | Barriers to research participation . |
|---|---|
| 1 | Timing for researchers and survivors doesn’t line up (example: researchers want to study 2 weeks after injury but patients are not in a place to participate) |
| 2 | Lack of understanding of the expected outcome or benefit |
| 3 | Lack of resources to have bandwidth to participate |
| 4 | Unaware that the research is happening |
| 5 | Lack of time |
| 6 | Participants never see the outcome of research |
| 7 | Survivor is focused on their own recovery |
| 8 | Lack of trust in the researchers/healthcare research community |
| 9 | Survivors don’t want to relive the trauma of their injury |
| 10 | Lack of compensation |
| 11 | Research won’t benefit the survivor (their care is over) |
| 12 | Cultural barriers |
| 13 | Research feels exclusive (example: “they don’t want to hear from people like me” |
| 14 | Geographical limitations (distance from researchers) |
| 15 | Language barriers (example: research is done only in English and a survivor that doesn’t speak or read English is unable to participate) |
| 16 | Fear of safety (example: pain or bad outcomes) |
| 17 | Technological limitations |
| 18 | Research is rarely patient-centered |
| 19 | Invasive questions make participation uncomfortable |
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