| Variables | Patients (n = 128) | Caregivers (n = 106) | P-Value |
| n (%) | n (%) | ||
| Age group | .009 | ||
| 20s | 7 (5.5) | 1 (1.0) | |
| 30s | 16 (12.6) | 10 (9.6) | |
| 40s | 41 (32.3) | 18 (17.3) | |
| 50s | 35 (27.6) | 33 (31.7) | |
| 60s | 18 (14.2) | 28 (26.9) | |
| 70s | 9 (7.1) | 14 (13.5) | |
| 80s | 1 (0.8) | 0 (0.0) | |
| Not stated | 1 | 2 | |
| Sex | <.001 | ||
| Male | 76 (60.3) | 36 (34.0) | |
| Female | 50 (39.7) | 70 (66.0) | |
| Not stated | 2 | 0 | |
| Age group of the care recipients | |||
| 20s | N/Aa | 14 (13.2) | |
| 30s | N/A | 7 (6.6) | |
| 40s | N/A | 19 (17.9) | |
| 50s | N/A | 17 (16.0) | |
| 60s | N/A | 27 (25.5) | |
| 70s | N/A | 18 (17.0) | |
| 80s | N/A | 4 (3.8) | |
| Sex of the care recipients | |||
| Male | N/A | 65 (61.3) | |
| Female | N/A | 41 (38.7) | |
| Relationship with the patient | |||
| Spouse/partner | N/A | 69 (65.1) | |
| Parent | N/A | 19 (17.9) | |
| Child | N/A | 12 (11.3) | |
| Sibling | N/A | 5 (4.7) | |
| Other (cousin or other peer) | N/A | 1 (0.9) | |
| Primary caregiver and surrogate decision-maker regarding the patients’ medical treatment and care | |||
| Yes | N/A | 89 (93.7) | |
| No | N/A | 6 (6.3) | |
| Not stated | N/A | 11 | |
| Duration since brain tumor diagnosis | .487 | ||
| Less than 6 months | 13 (10.2) | 10 (9.4) | |
| 6 months to less than 1 year | 10 (7.8) | 16 (15.1) | |
| 1 year to less than 2 years | 19 (14.8) | 20 (18.9) | |
| 2 years to less than 5 years | 40 (31.3) | 29 (27.4) | |
| 5 years to less than 10 years | 25 (19.5) | 17 (16.0) | |
| 10 years or more | 21 (16.4) | 14 (13.2) | |
| Treatment facility for brain tumors | .118 | ||
| University hospital | 64 (50.4) | 47 (44.3) | |
| Cancer center | 56 (44.1) | 45 (42.5) | |
| Other hospitals | 7 (5.5) | 14 (13.2) | |
| Patient’s surgical history of brain tumors | .726 | ||
| Yes | 122 (95.3) | 99 (93.4) | |
| No | 6 (4.7) | 7 (6.6) | |
| Types of primary malignant brain tumors | .117 | ||
| Glioblastoma | 43 (33.6) | 48 (45.3) | |
| Glioma grade 3 | 34 (26.6) | 27 (25.5) | |
| Glioma grade 2 | 36 (28.1) | 11 (10.4) | |
| Primary central nervous system lymphoma | 5 (3.9) | 5 (4.7) | |
| Other malignant brain tumors | 10 (7.8) | 15 (14.2) | |
| Patient’s KPSb | <.001 | ||
| ≥70 | 113 (88.3) | 61 (57.5) | |
| <70 | 15 (11.7) | 45 (42.5) | |
| Distress and Impact Thermometer | .009 | ||
| Positive | 29 (23.0) | 41 (39.8) | |
| Negative | 97 (77.0) | 62 (60.2) | |
| Variables | Patients (n = 128) | Caregivers (n = 106) | P-Value |
| n (%) | n (%) | ||
| Age group | .009 | ||
| 20s | 7 (5.5) | 1 (1.0) | |
| 30s | 16 (12.6) | 10 (9.6) | |
| 40s | 41 (32.3) | 18 (17.3) | |
| 50s | 35 (27.6) | 33 (31.7) | |
| 60s | 18 (14.2) | 28 (26.9) | |
| 70s | 9 (7.1) | 14 (13.5) | |
| 80s | 1 (0.8) | 0 (0.0) | |
| Not stated | 1 | 2 | |
| Sex | <.001 | ||
| Male | 76 (60.3) | 36 (34.0) | |
| Female | 50 (39.7) | 70 (66.0) | |
| Not stated | 2 | 0 | |
| Age group of the care recipients | |||
| 20s | N/Aa | 14 (13.2) | |
| 30s | N/A | 7 (6.6) | |
| 40s | N/A | 19 (17.9) | |
| 50s | N/A | 17 (16.0) | |
| 60s | N/A | 27 (25.5) | |
| 70s | N/A | 18 (17.0) | |
| 80s | N/A | 4 (3.8) | |
| Sex of the care recipients | |||
| Male | N/A | 65 (61.3) | |
| Female | N/A | 41 (38.7) | |
| Relationship with the patient | |||
| Spouse/partner | N/A | 69 (65.1) | |
| Parent | N/A | 19 (17.9) | |
| Child | N/A | 12 (11.3) | |
| Sibling | N/A | 5 (4.7) | |
| Other (cousin or other peer) | N/A | 1 (0.9) | |
| Primary caregiver and surrogate decision-maker regarding the patients’ medical treatment and care | |||
| Yes | N/A | 89 (93.7) | |
| No | N/A | 6 (6.3) | |
| Not stated | N/A | 11 | |
| Duration since brain tumor diagnosis | .487 | ||
| Less than 6 months | 13 (10.2) | 10 (9.4) | |
| 6 months to less than 1 year | 10 (7.8) | 16 (15.1) | |
| 1 year to less than 2 years | 19 (14.8) | 20 (18.9) | |
| 2 years to less than 5 years | 40 (31.3) | 29 (27.4) | |
| 5 years to less than 10 years | 25 (19.5) | 17 (16.0) | |
| 10 years or more | 21 (16.4) | 14 (13.2) | |
| Treatment facility for brain tumors | .118 | ||
| University hospital | 64 (50.4) | 47 (44.3) | |
| Cancer center | 56 (44.1) | 45 (42.5) | |
| Other hospitals | 7 (5.5) | 14 (13.2) | |
| Patient’s surgical history of brain tumors | .726 | ||
| Yes | 122 (95.3) | 99 (93.4) | |
| No | 6 (4.7) | 7 (6.6) | |
| Types of primary malignant brain tumors | .117 | ||
| Glioblastoma | 43 (33.6) | 48 (45.3) | |
| Glioma grade 3 | 34 (26.6) | 27 (25.5) | |
| Glioma grade 2 | 36 (28.1) | 11 (10.4) | |
| Primary central nervous system lymphoma | 5 (3.9) | 5 (4.7) | |
| Other malignant brain tumors | 10 (7.8) | 15 (14.2) | |
| Patient’s KPSb | <.001 | ||
| ≥70 | 113 (88.3) | 61 (57.5) | |
| <70 | 15 (11.7) | 45 (42.5) | |
| Distress and Impact Thermometer | .009 | ||
| Positive | 29 (23.0) | 41 (39.8) | |
| Negative | 97 (77.0) | 62 (60.2) | |
a“N/A” for missing data.
bPatient’s KPS, as reported by caregivers, is based on the caregiver’s observations of the patient’s activities of daily living.
| Variables | Patients (n = 128) | Caregivers (n = 106) | P-Value |
| n (%) | n (%) | ||
| Age group | .009 | ||
| 20s | 7 (5.5) | 1 (1.0) | |
| 30s | 16 (12.6) | 10 (9.6) | |
| 40s | 41 (32.3) | 18 (17.3) | |
| 50s | 35 (27.6) | 33 (31.7) | |
| 60s | 18 (14.2) | 28 (26.9) | |
| 70s | 9 (7.1) | 14 (13.5) | |
| 80s | 1 (0.8) | 0 (0.0) | |
| Not stated | 1 | 2 | |
| Sex | <.001 | ||
| Male | 76 (60.3) | 36 (34.0) | |
| Female | 50 (39.7) | 70 (66.0) | |
| Not stated | 2 | 0 | |
| Age group of the care recipients | |||
| 20s | N/Aa | 14 (13.2) | |
| 30s | N/A | 7 (6.6) | |
| 40s | N/A | 19 (17.9) | |
| 50s | N/A | 17 (16.0) | |
| 60s | N/A | 27 (25.5) | |
| 70s | N/A | 18 (17.0) | |
| 80s | N/A | 4 (3.8) | |
| Sex of the care recipients | |||
| Male | N/A | 65 (61.3) | |
| Female | N/A | 41 (38.7) | |
| Relationship with the patient | |||
| Spouse/partner | N/A | 69 (65.1) | |
| Parent | N/A | 19 (17.9) | |
| Child | N/A | 12 (11.3) | |
| Sibling | N/A | 5 (4.7) | |
| Other (cousin or other peer) | N/A | 1 (0.9) | |
| Primary caregiver and surrogate decision-maker regarding the patients’ medical treatment and care | |||
| Yes | N/A | 89 (93.7) | |
| No | N/A | 6 (6.3) | |
| Not stated | N/A | 11 | |
| Duration since brain tumor diagnosis | .487 | ||
| Less than 6 months | 13 (10.2) | 10 (9.4) | |
| 6 months to less than 1 year | 10 (7.8) | 16 (15.1) | |
| 1 year to less than 2 years | 19 (14.8) | 20 (18.9) | |
| 2 years to less than 5 years | 40 (31.3) | 29 (27.4) | |
| 5 years to less than 10 years | 25 (19.5) | 17 (16.0) | |
| 10 years or more | 21 (16.4) | 14 (13.2) | |
| Treatment facility for brain tumors | .118 | ||
| University hospital | 64 (50.4) | 47 (44.3) | |
| Cancer center | 56 (44.1) | 45 (42.5) | |
| Other hospitals | 7 (5.5) | 14 (13.2) | |
| Patient’s surgical history of brain tumors | .726 | ||
| Yes | 122 (95.3) | 99 (93.4) | |
| No | 6 (4.7) | 7 (6.6) | |
| Types of primary malignant brain tumors | .117 | ||
| Glioblastoma | 43 (33.6) | 48 (45.3) | |
| Glioma grade 3 | 34 (26.6) | 27 (25.5) | |
| Glioma grade 2 | 36 (28.1) | 11 (10.4) | |
| Primary central nervous system lymphoma | 5 (3.9) | 5 (4.7) | |
| Other malignant brain tumors | 10 (7.8) | 15 (14.2) | |
| Patient’s KPSb | <.001 | ||
| ≥70 | 113 (88.3) | 61 (57.5) | |
| <70 | 15 (11.7) | 45 (42.5) | |
| Distress and Impact Thermometer | .009 | ||
| Positive | 29 (23.0) | 41 (39.8) | |
| Negative | 97 (77.0) | 62 (60.2) | |
| Variables | Patients (n = 128) | Caregivers (n = 106) | P-Value |
| n (%) | n (%) | ||
| Age group | .009 | ||
| 20s | 7 (5.5) | 1 (1.0) | |
| 30s | 16 (12.6) | 10 (9.6) | |
| 40s | 41 (32.3) | 18 (17.3) | |
| 50s | 35 (27.6) | 33 (31.7) | |
| 60s | 18 (14.2) | 28 (26.9) | |
| 70s | 9 (7.1) | 14 (13.5) | |
| 80s | 1 (0.8) | 0 (0.0) | |
| Not stated | 1 | 2 | |
| Sex | <.001 | ||
| Male | 76 (60.3) | 36 (34.0) | |
| Female | 50 (39.7) | 70 (66.0) | |
| Not stated | 2 | 0 | |
| Age group of the care recipients | |||
| 20s | N/Aa | 14 (13.2) | |
| 30s | N/A | 7 (6.6) | |
| 40s | N/A | 19 (17.9) | |
| 50s | N/A | 17 (16.0) | |
| 60s | N/A | 27 (25.5) | |
| 70s | N/A | 18 (17.0) | |
| 80s | N/A | 4 (3.8) | |
| Sex of the care recipients | |||
| Male | N/A | 65 (61.3) | |
| Female | N/A | 41 (38.7) | |
| Relationship with the patient | |||
| Spouse/partner | N/A | 69 (65.1) | |
| Parent | N/A | 19 (17.9) | |
| Child | N/A | 12 (11.3) | |
| Sibling | N/A | 5 (4.7) | |
| Other (cousin or other peer) | N/A | 1 (0.9) | |
| Primary caregiver and surrogate decision-maker regarding the patients’ medical treatment and care | |||
| Yes | N/A | 89 (93.7) | |
| No | N/A | 6 (6.3) | |
| Not stated | N/A | 11 | |
| Duration since brain tumor diagnosis | .487 | ||
| Less than 6 months | 13 (10.2) | 10 (9.4) | |
| 6 months to less than 1 year | 10 (7.8) | 16 (15.1) | |
| 1 year to less than 2 years | 19 (14.8) | 20 (18.9) | |
| 2 years to less than 5 years | 40 (31.3) | 29 (27.4) | |
| 5 years to less than 10 years | 25 (19.5) | 17 (16.0) | |
| 10 years or more | 21 (16.4) | 14 (13.2) | |
| Treatment facility for brain tumors | .118 | ||
| University hospital | 64 (50.4) | 47 (44.3) | |
| Cancer center | 56 (44.1) | 45 (42.5) | |
| Other hospitals | 7 (5.5) | 14 (13.2) | |
| Patient’s surgical history of brain tumors | .726 | ||
| Yes | 122 (95.3) | 99 (93.4) | |
| No | 6 (4.7) | 7 (6.6) | |
| Types of primary malignant brain tumors | .117 | ||
| Glioblastoma | 43 (33.6) | 48 (45.3) | |
| Glioma grade 3 | 34 (26.6) | 27 (25.5) | |
| Glioma grade 2 | 36 (28.1) | 11 (10.4) | |
| Primary central nervous system lymphoma | 5 (3.9) | 5 (4.7) | |
| Other malignant brain tumors | 10 (7.8) | 15 (14.2) | |
| Patient’s KPSb | <.001 | ||
| ≥70 | 113 (88.3) | 61 (57.5) | |
| <70 | 15 (11.7) | 45 (42.5) | |
| Distress and Impact Thermometer | .009 | ||
| Positive | 29 (23.0) | 41 (39.8) | |
| Negative | 97 (77.0) | 62 (60.2) | |
a“N/A” for missing data.
bPatient’s KPS, as reported by caregivers, is based on the caregiver’s observations of the patient’s activities of daily living.
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