Table 4:

Examples of dbGAP Consent Groups

Consent groupConsent information
Health/Medical/Biomedical (IRB)Use of this data is limited to health/medical/biomedical purposes, does not include the study of population origins or ancestry. Requestor must provide documentation of local IRB approval. Use of the MGH AF Study data deposited in dbGaP is restricted to research on associations between phenotypes and genotypes. MGH AF Study data may not be used to investigate individual subject genotypes, individual pedigree structures, perceptions of racial/ethnic identity, non-maternity/paternity, and of variables that could be considered as stigmatizing an individual or group. All research must be related to the etiology and prevention of morbidity and mortality of the U.S. population consistent with the demographic distribution in the MGH AF Study. Data users will be required to obtain IRB approval for their projects from their respective institutions (please note that only full or expedited approvals will be accepted).
Disease-Specific (Atrial Fibrillation, IRB, RD)Use of the data must be related to Atrial Fibrillation and related disorders. Requestor must provide documentation of local IRB approval. Data use is limited to research related to atrial fibrillation and cardiovascular disease.
Consent groupConsent information
Health/Medical/Biomedical (IRB)Use of this data is limited to health/medical/biomedical purposes, does not include the study of population origins or ancestry. Requestor must provide documentation of local IRB approval. Use of the MGH AF Study data deposited in dbGaP is restricted to research on associations between phenotypes and genotypes. MGH AF Study data may not be used to investigate individual subject genotypes, individual pedigree structures, perceptions of racial/ethnic identity, non-maternity/paternity, and of variables that could be considered as stigmatizing an individual or group. All research must be related to the etiology and prevention of morbidity and mortality of the U.S. population consistent with the demographic distribution in the MGH AF Study. Data users will be required to obtain IRB approval for their projects from their respective institutions (please note that only full or expedited approvals will be accepted).
Disease-Specific (Atrial Fibrillation, IRB, RD)Use of the data must be related to Atrial Fibrillation and related disorders. Requestor must provide documentation of local IRB approval. Data use is limited to research related to atrial fibrillation and cardiovascular disease.

Source: [61]. MGH AF: Massachusetts General Hospital Atrial Fibrillation.

Table 4:

Examples of dbGAP Consent Groups

Consent groupConsent information
Health/Medical/Biomedical (IRB)Use of this data is limited to health/medical/biomedical purposes, does not include the study of population origins or ancestry. Requestor must provide documentation of local IRB approval. Use of the MGH AF Study data deposited in dbGaP is restricted to research on associations between phenotypes and genotypes. MGH AF Study data may not be used to investigate individual subject genotypes, individual pedigree structures, perceptions of racial/ethnic identity, non-maternity/paternity, and of variables that could be considered as stigmatizing an individual or group. All research must be related to the etiology and prevention of morbidity and mortality of the U.S. population consistent with the demographic distribution in the MGH AF Study. Data users will be required to obtain IRB approval for their projects from their respective institutions (please note that only full or expedited approvals will be accepted).
Disease-Specific (Atrial Fibrillation, IRB, RD)Use of the data must be related to Atrial Fibrillation and related disorders. Requestor must provide documentation of local IRB approval. Data use is limited to research related to atrial fibrillation and cardiovascular disease.
Consent groupConsent information
Health/Medical/Biomedical (IRB)Use of this data is limited to health/medical/biomedical purposes, does not include the study of population origins or ancestry. Requestor must provide documentation of local IRB approval. Use of the MGH AF Study data deposited in dbGaP is restricted to research on associations between phenotypes and genotypes. MGH AF Study data may not be used to investigate individual subject genotypes, individual pedigree structures, perceptions of racial/ethnic identity, non-maternity/paternity, and of variables that could be considered as stigmatizing an individual or group. All research must be related to the etiology and prevention of morbidity and mortality of the U.S. population consistent with the demographic distribution in the MGH AF Study. Data users will be required to obtain IRB approval for their projects from their respective institutions (please note that only full or expedited approvals will be accepted).
Disease-Specific (Atrial Fibrillation, IRB, RD)Use of the data must be related to Atrial Fibrillation and related disorders. Requestor must provide documentation of local IRB approval. Data use is limited to research related to atrial fibrillation and cardiovascular disease.

Source: [61]. MGH AF: Massachusetts General Hospital Atrial Fibrillation.

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