Respondents' characteristics and perceptions, presented separately for those reporting occurrence of withdrawal versus reporting no withdrawals, taking into account eventual clustering of answers on country levela
. | Occurrence of withdrawals (n = 220) . | No withdrawals (n = 308) . |
---|---|---|
Characteristics | ||
Male gender | 149 (68) | 187 (61) |
Years of clinical experience | ||
<5 | 21 (10) | 26 (8) |
5–10 | 29 (13) | 45 (15) |
10–20 | 76 (35) | 86 (28) |
>20 | 94(43) | 151 (49) |
Number of HD patients under respondent's direct care | ||
<25 | 54 (25) | 74 (24) |
25–50 | 42 (19) | 56 (18) |
>50 | 124 (56) | 178 (58) |
Working in a public centre | 181 (82) | 218 (71) |
Perceptions | ||
Laws and regulations | ||
Stopping life-prolonging treatment is allowedb | 159 (72) | 136 (44) |
Regulation of the right for palliative care | ||
Explicit law | 71 (32) | 52 (17) |
No explicit law, but official regulation | 26 (12) | 23 (8) |
No official regulation, but permissive attitude | 91 (41) | 154 (50) |
None of the above | 32 (15) | 79 (26) |
Withdrawal decision-making process | ||
Presence of local protocol on withdrawal decision making | 23 (10) | 14 (5) |
Geriatrician consulted in ≥25% of withdrawal decisions | 31 (15) | 20 (6) |
Who makes the decision | ||
Doctor alone | 36 (16) | 44 (14) |
Patient/family alone | 15 (7) | 86 (28) |
Shared decision between doctor and patient/family | 169 (77) | 170 (55) |
Would withdraw even if patient's decision is not supported by family | 102 (46) | 124 (40) |
Organization of palliative care after withdrawal | ||
Presence of local protocol on organization of palliative care | 34 (15) | 21 (7) |
Palliative care organizations | ||
Government or private for-profit organizations | 99 (45) | 128 (42) |
Private not-for-profit organizations and volunteers | 86 (39) | 108 (35) |
Not organized or do not know | 35 (16) | 72 (23) |
Palliative care is fully or partly reimbursed | 153 (70) | 152 (49) |
Palliative care training and education | ||
Presence of dedicated specialist training on palliative care | 129 (59) | 123 (40) |
Palliative care as explicit topic within nephrology curriculum | 43 (20) | 24 (8) |
Attending CME sessions on palliative care in last 3 years | 79 (36) | 62 (20) |
. | Occurrence of withdrawals (n = 220) . | No withdrawals (n = 308) . |
---|---|---|
Characteristics | ||
Male gender | 149 (68) | 187 (61) |
Years of clinical experience | ||
<5 | 21 (10) | 26 (8) |
5–10 | 29 (13) | 45 (15) |
10–20 | 76 (35) | 86 (28) |
>20 | 94(43) | 151 (49) |
Number of HD patients under respondent's direct care | ||
<25 | 54 (25) | 74 (24) |
25–50 | 42 (19) | 56 (18) |
>50 | 124 (56) | 178 (58) |
Working in a public centre | 181 (82) | 218 (71) |
Perceptions | ||
Laws and regulations | ||
Stopping life-prolonging treatment is allowedb | 159 (72) | 136 (44) |
Regulation of the right for palliative care | ||
Explicit law | 71 (32) | 52 (17) |
No explicit law, but official regulation | 26 (12) | 23 (8) |
No official regulation, but permissive attitude | 91 (41) | 154 (50) |
None of the above | 32 (15) | 79 (26) |
Withdrawal decision-making process | ||
Presence of local protocol on withdrawal decision making | 23 (10) | 14 (5) |
Geriatrician consulted in ≥25% of withdrawal decisions | 31 (15) | 20 (6) |
Who makes the decision | ||
Doctor alone | 36 (16) | 44 (14) |
Patient/family alone | 15 (7) | 86 (28) |
Shared decision between doctor and patient/family | 169 (77) | 170 (55) |
Would withdraw even if patient's decision is not supported by family | 102 (46) | 124 (40) |
Organization of palliative care after withdrawal | ||
Presence of local protocol on organization of palliative care | 34 (15) | 21 (7) |
Palliative care organizations | ||
Government or private for-profit organizations | 99 (45) | 128 (42) |
Private not-for-profit organizations and volunteers | 86 (39) | 108 (35) |
Not organized or do not know | 35 (16) | 72 (23) |
Palliative care is fully or partly reimbursed | 153 (70) | 152 (49) |
Palliative care training and education | ||
Presence of dedicated specialist training on palliative care | 129 (59) | 123 (40) |
Palliative care as explicit topic within nephrology curriculum | 43 (20) | 24 (8) |
Attending CME sessions on palliative care in last 3 years | 79 (36) | 62 (20) |
Values are numbers (%). CME, continuous medical education; HD, haemodialysis.
aThose who estimated the percentage of withdrawals in haemodialysis patients under their direct care to be <1% in the last 12 months were classified as ‘reporting no withdrawals’, and all others as ‘reporting occurrence of withdrawals’.
bRefers to perception that stopping life-prolonging treatment in terminally ill patients is formally or informally allowed.
Respondents' characteristics and perceptions, presented separately for those reporting occurrence of withdrawal versus reporting no withdrawals, taking into account eventual clustering of answers on country levela
. | Occurrence of withdrawals (n = 220) . | No withdrawals (n = 308) . |
---|---|---|
Characteristics | ||
Male gender | 149 (68) | 187 (61) |
Years of clinical experience | ||
<5 | 21 (10) | 26 (8) |
5–10 | 29 (13) | 45 (15) |
10–20 | 76 (35) | 86 (28) |
>20 | 94(43) | 151 (49) |
Number of HD patients under respondent's direct care | ||
<25 | 54 (25) | 74 (24) |
25–50 | 42 (19) | 56 (18) |
>50 | 124 (56) | 178 (58) |
Working in a public centre | 181 (82) | 218 (71) |
Perceptions | ||
Laws and regulations | ||
Stopping life-prolonging treatment is allowedb | 159 (72) | 136 (44) |
Regulation of the right for palliative care | ||
Explicit law | 71 (32) | 52 (17) |
No explicit law, but official regulation | 26 (12) | 23 (8) |
No official regulation, but permissive attitude | 91 (41) | 154 (50) |
None of the above | 32 (15) | 79 (26) |
Withdrawal decision-making process | ||
Presence of local protocol on withdrawal decision making | 23 (10) | 14 (5) |
Geriatrician consulted in ≥25% of withdrawal decisions | 31 (15) | 20 (6) |
Who makes the decision | ||
Doctor alone | 36 (16) | 44 (14) |
Patient/family alone | 15 (7) | 86 (28) |
Shared decision between doctor and patient/family | 169 (77) | 170 (55) |
Would withdraw even if patient's decision is not supported by family | 102 (46) | 124 (40) |
Organization of palliative care after withdrawal | ||
Presence of local protocol on organization of palliative care | 34 (15) | 21 (7) |
Palliative care organizations | ||
Government or private for-profit organizations | 99 (45) | 128 (42) |
Private not-for-profit organizations and volunteers | 86 (39) | 108 (35) |
Not organized or do not know | 35 (16) | 72 (23) |
Palliative care is fully or partly reimbursed | 153 (70) | 152 (49) |
Palliative care training and education | ||
Presence of dedicated specialist training on palliative care | 129 (59) | 123 (40) |
Palliative care as explicit topic within nephrology curriculum | 43 (20) | 24 (8) |
Attending CME sessions on palliative care in last 3 years | 79 (36) | 62 (20) |
. | Occurrence of withdrawals (n = 220) . | No withdrawals (n = 308) . |
---|---|---|
Characteristics | ||
Male gender | 149 (68) | 187 (61) |
Years of clinical experience | ||
<5 | 21 (10) | 26 (8) |
5–10 | 29 (13) | 45 (15) |
10–20 | 76 (35) | 86 (28) |
>20 | 94(43) | 151 (49) |
Number of HD patients under respondent's direct care | ||
<25 | 54 (25) | 74 (24) |
25–50 | 42 (19) | 56 (18) |
>50 | 124 (56) | 178 (58) |
Working in a public centre | 181 (82) | 218 (71) |
Perceptions | ||
Laws and regulations | ||
Stopping life-prolonging treatment is allowedb | 159 (72) | 136 (44) |
Regulation of the right for palliative care | ||
Explicit law | 71 (32) | 52 (17) |
No explicit law, but official regulation | 26 (12) | 23 (8) |
No official regulation, but permissive attitude | 91 (41) | 154 (50) |
None of the above | 32 (15) | 79 (26) |
Withdrawal decision-making process | ||
Presence of local protocol on withdrawal decision making | 23 (10) | 14 (5) |
Geriatrician consulted in ≥25% of withdrawal decisions | 31 (15) | 20 (6) |
Who makes the decision | ||
Doctor alone | 36 (16) | 44 (14) |
Patient/family alone | 15 (7) | 86 (28) |
Shared decision between doctor and patient/family | 169 (77) | 170 (55) |
Would withdraw even if patient's decision is not supported by family | 102 (46) | 124 (40) |
Organization of palliative care after withdrawal | ||
Presence of local protocol on organization of palliative care | 34 (15) | 21 (7) |
Palliative care organizations | ||
Government or private for-profit organizations | 99 (45) | 128 (42) |
Private not-for-profit organizations and volunteers | 86 (39) | 108 (35) |
Not organized or do not know | 35 (16) | 72 (23) |
Palliative care is fully or partly reimbursed | 153 (70) | 152 (49) |
Palliative care training and education | ||
Presence of dedicated specialist training on palliative care | 129 (59) | 123 (40) |
Palliative care as explicit topic within nephrology curriculum | 43 (20) | 24 (8) |
Attending CME sessions on palliative care in last 3 years | 79 (36) | 62 (20) |
Values are numbers (%). CME, continuous medical education; HD, haemodialysis.
aThose who estimated the percentage of withdrawals in haemodialysis patients under their direct care to be <1% in the last 12 months were classified as ‘reporting no withdrawals’, and all others as ‘reporting occurrence of withdrawals’.
bRefers to perception that stopping life-prolonging treatment in terminally ill patients is formally or informally allowed.
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