November 2009Genetic counselling revealed a succinate dehydrogenase complex subunit D mutation (c.416T>C p.leu139pro)
No catecholamine excess
April 2021Screening with thoracic and abdominal magnetic resonance imaging (MRI) revealed a nodule of 9 mm in diameter in the left lateral mediastinum
June 2021Gallium dotatate positron emission tomography–computed tomography (68Ga-octreotide) showed an active mass caudally from the the pulmonary trunk, 23 × 11 mm, suggestive of a paraganglioma
January 2022Transthoracic echocardiography: normal right and left ventricular function, no valve abnormalities, no signs of external compression
Cardiac MRI: intracardiac lesion just below the left main coronary artery and left anterior descending (LAD) of 16 × 16 × 12 mm, no fat, no late gadolinium enhancement. These results suggested a cardiac paraganglioma
‘wait and scan’ strategy
February 2022Coronary computed tomography angiography: suspected paraganglioma ventrocaudal from the left main coronary artery and proximal LAD (18 × 14 × 14 mm)
September 2022Coronary computed tomography angiography: growth of the mass ventrocaudal from the left main coronary artery and proximal LAD (20 × 17 × 12 mm)
October 2022Coronary angiography: no signs of coronary artery disease, suspected paraganglioma visible around the left main coronary artery and LAD
January 2023Uncomplicated resection of the paraganglioma.
Histological confirmation of the paraganglioma
November 2009Genetic counselling revealed a succinate dehydrogenase complex subunit D mutation (c.416T>C p.leu139pro)
No catecholamine excess
April 2021Screening with thoracic and abdominal magnetic resonance imaging (MRI) revealed a nodule of 9 mm in diameter in the left lateral mediastinum
June 2021Gallium dotatate positron emission tomography–computed tomography (68Ga-octreotide) showed an active mass caudally from the the pulmonary trunk, 23 × 11 mm, suggestive of a paraganglioma
January 2022Transthoracic echocardiography: normal right and left ventricular function, no valve abnormalities, no signs of external compression
Cardiac MRI: intracardiac lesion just below the left main coronary artery and left anterior descending (LAD) of 16 × 16 × 12 mm, no fat, no late gadolinium enhancement. These results suggested a cardiac paraganglioma
‘wait and scan’ strategy
February 2022Coronary computed tomography angiography: suspected paraganglioma ventrocaudal from the left main coronary artery and proximal LAD (18 × 14 × 14 mm)
September 2022Coronary computed tomography angiography: growth of the mass ventrocaudal from the left main coronary artery and proximal LAD (20 × 17 × 12 mm)
October 2022Coronary angiography: no signs of coronary artery disease, suspected paraganglioma visible around the left main coronary artery and LAD
January 2023Uncomplicated resection of the paraganglioma.
Histological confirmation of the paraganglioma
November 2009Genetic counselling revealed a succinate dehydrogenase complex subunit D mutation (c.416T>C p.leu139pro)
No catecholamine excess
April 2021Screening with thoracic and abdominal magnetic resonance imaging (MRI) revealed a nodule of 9 mm in diameter in the left lateral mediastinum
June 2021Gallium dotatate positron emission tomography–computed tomography (68Ga-octreotide) showed an active mass caudally from the the pulmonary trunk, 23 × 11 mm, suggestive of a paraganglioma
January 2022Transthoracic echocardiography: normal right and left ventricular function, no valve abnormalities, no signs of external compression
Cardiac MRI: intracardiac lesion just below the left main coronary artery and left anterior descending (LAD) of 16 × 16 × 12 mm, no fat, no late gadolinium enhancement. These results suggested a cardiac paraganglioma
‘wait and scan’ strategy
February 2022Coronary computed tomography angiography: suspected paraganglioma ventrocaudal from the left main coronary artery and proximal LAD (18 × 14 × 14 mm)
September 2022Coronary computed tomography angiography: growth of the mass ventrocaudal from the left main coronary artery and proximal LAD (20 × 17 × 12 mm)
October 2022Coronary angiography: no signs of coronary artery disease, suspected paraganglioma visible around the left main coronary artery and LAD
January 2023Uncomplicated resection of the paraganglioma.
Histological confirmation of the paraganglioma
November 2009Genetic counselling revealed a succinate dehydrogenase complex subunit D mutation (c.416T>C p.leu139pro)
No catecholamine excess
April 2021Screening with thoracic and abdominal magnetic resonance imaging (MRI) revealed a nodule of 9 mm in diameter in the left lateral mediastinum
June 2021Gallium dotatate positron emission tomography–computed tomography (68Ga-octreotide) showed an active mass caudally from the the pulmonary trunk, 23 × 11 mm, suggestive of a paraganglioma
January 2022Transthoracic echocardiography: normal right and left ventricular function, no valve abnormalities, no signs of external compression
Cardiac MRI: intracardiac lesion just below the left main coronary artery and left anterior descending (LAD) of 16 × 16 × 12 mm, no fat, no late gadolinium enhancement. These results suggested a cardiac paraganglioma
‘wait and scan’ strategy
February 2022Coronary computed tomography angiography: suspected paraganglioma ventrocaudal from the left main coronary artery and proximal LAD (18 × 14 × 14 mm)
September 2022Coronary computed tomography angiography: growth of the mass ventrocaudal from the left main coronary artery and proximal LAD (20 × 17 × 12 mm)
October 2022Coronary angiography: no signs of coronary artery disease, suspected paraganglioma visible around the left main coronary artery and LAD
January 2023Uncomplicated resection of the paraganglioma.
Histological confirmation of the paraganglioma
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