Disease-specific PROMs (multidimensional or domain-specific) developed for cardiovascular patient populations
| Name . | Domain . | Developed for . | Level of support . |
|---|---|---|---|
| Cardiac patients | |||
| Cardiac Event Threat Questionnaire (CTQ)31 | Multidimensional | Cardiac patients | / |
| Cardiac Health Profile (CHP)32 | Multidimensional | Cardiac patients | −33 |
| LifeWare Cardiac Assessment Index (LIFEWARE CAI)34 | Multidimensional | Cardiac patients | −33 |
| Multidimensional Index of Life Quality (MILQ)35 | Multidimensional | Cardiac patients | +33 |
| Quality of Life Index-Cardiac Version (QLI-CV)36 | Multidimensional | Cardiac patients | −33 |
| Duke Activity Status Index (DASI)37 | Physical functioning | Cardiac patients | / |
| Specific Activity Scale38 | Physical functioning | Cardiac patients | / |
| Cardiac anxiety questionnaire39 | Anxiety | Cardiac patients | / |
| Cardiac Depression Scale (CDS)40 | Depression | Cardiac patients | / |
| Cardiac distress inventory41 | Psychological functioning | Cardiac patients | / |
| Arrhythmias and electrophysiology | |||
| Patient Perception of Arrhythmia Questionnaire (PPAQ)42 | Multidimensional | Arrhythmias | −33 |
| AF643,44 | Multidimensional | Atrial fibrillation | −33,45,46 |
| AFImpact47 | Multidimensional | Atrial fibrillation | −33 |
| AF-QoL48 | Multidimensional | Atrial fibrillation | −33,45 |
| Atrial Fibrillation Effect on QualiTy-of-Life (AFEQT)49 | Multidimensional | Atrial fibrillation | +33,45 |
| Atrial Fibrillation Quality of Life Questionnaire (AFQLQ)50 | Multidimensional | Atrial fibrillation | −33,45,51 |
| Quality of life in AF patients (QLAF)52 | Multidimensional | Atrial fibrillation | −33,45 |
| University of Toronto Atrial Fibrillation Severity Scale (AFSS)53 | Multidimensional | Atrial fibrillation | −46,51 |
| Cardiff Cardiac Ablation PROM (C-CAP)54,55 | Multidimensional | Pre- and post-ablation | / |
| Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia (ASTA)56 | Symptoms | Arrhythmias | −33,46,51 |
| Umeå 22 Arrhythmia Questions (U22)57 | Symptoms | Arrhythmias | −46 |
| Canadian Cardiovascular Society-Severity of Atrial Fibrillation (CCS-SAF)58 | Symptoms | Atrial fibrillation | −46 |
| Mayo Atrial Fibrillation-Specific Symptom Inventory (MAFSI)59 | Symptoms | Atrial fibrillation | −46 |
| Symptom Checklist—Frequency and Severity Scale (SCL) aka Toronto AF Symptoms Check List60 | Symptoms | Atrial fibrillation | −51 |
| Knowledge, Attitude, and Behaviour questionnaire to patients with Atrial Fibrillation undergoing Radiofrequency Catheter Ablation61 | Self-management | Atrial fibrillation | / |
| Knowledge and self-management tool62 | Self-management | Atrial fibrillation | / |
| VALIOSA (Satisfaction with remote cardiac monitoring)63 | Experience with care | Implanted cardiac devices | / |
| Ischaemic heart disease | |||
| Modified Postoperative Recovery Profile questionnaire re (PRP-CABG)64 | Multidimensional | CABG | / |
| Coronary Revascularisation Outcome Questionnaire (CROQ)65 | Multidimensional | CABG or PTCA | +33 |
| Angina Pectoris Quality of Life Questionnaire (APQLQ)66 | Multidimensional | Ischaemic heart disease | +33 |
| Cardiovascular Limitations and Symptoms Profile (CLASP)67 | Multidimensional | Ischaemic heart disease | +33 |
| Health Complaints Scale (HCS)68 | Multidimensional | Ischaemic heart disease | −33 |
| HeartQol69,70 | Multidimensional | Ischaemic heart disease | +33 |
| Quality of Life Index (QLI)71 | Multidimensional | Ischaemic heart disease | / |
| Quality of Life Instruments for Chronic Diseases—Coronary Heart Disease (QLICD-CHD)72 | Multidimensional | Ischaemic heart disease | +33 |
| Seattle Angina Questionnaire (SAQ19)73 | Multidimensional | Ischaemic heart disease | +33 |
| Short version of the Seattle Angina Questionnaire (SAQ7)74 | Multidimensional | Ischaemic heart disease | / |
| Summary Index for the Assessment of Quality of Life in Angina Pectoris75 | Multidimensional | Ischaemic heart disease | / |
| MacNew Heart Disease Questionnaire (aka QLMI-2)76 | Multidimensional | Myocardial infarction | ++33 |
| Myocardial Infarction Dimensional Assessment Scale (MIDAS)27 | Multidimensional | Myocardial infarction | +33 |
| Quality of Life Questionnaire (QLMI)77 | Multidimensional | Myocardial infarction | / |
| Cardiac Surgery Symptom Inventory (CSSI)78 | Symptoms | CABG | / |
| Cardiac Symptom Survey (CSS)79 | Symptoms | CABG | −46 |
| Heart Surgery Symptom Inventory (HSSI)80 | Symptoms | CABG | / |
| Symptoms of Illness Score (SOIS)81 | Symptoms | CABG/valve surgery | / |
| Symptom Inventory82 | Symptoms | Cardiac surgery | / |
| Cardiac Symptoms Scale83 | Symptoms | Cardiac surgery/PTCA | / |
| Acute Coronary Syndrome (ACS) symptom checklist84 | Symptoms | Acute Coronary Syndrome | −46 |
| McSweeney Acute and Prodromal Myocardial Infarction Symptom Survey (MAPMISS)85 | Symptoms | Ischaemic heart disease | −46 |
| Symptoms of Acute Coronary Syndrome Inventory (SACSI)86 | Symptoms | Acute Coronary Syndrome | −46 |
| Symptom Scale87 | Symptoms | Ischaemic heart disease | / |
| Shortened WHO Rose Angina Questionnaire88 | Symptoms | Ischaemic heart disease | / |
| WHO Rose angina questionnaire30 | Symptoms | Ischaemic heart disease | / |
| Angina-related Limitations at Work Questionnaire (ALWQ)89 | Work-related functioning | Ischaemic heart disease | / |
| Congenital heart disease | |||
| ACHD PRO, Adult Congenital Heart Disease—Patient-Reported Outcome90 | Multidimensional | Congenital heart disease | +33 |
| Congenital Heart Disease—TNO/AZL Adult Quality Of Life (CHD-TAAQOL)91 | Multidimensional | Congenital heart disease | −33 |
| PedsQl cardiac module92 | Multidimensional | Congenital heart disease | / |
| Pediatric Cardiac QOL Inventory93 | Multidimensional | Congenital heart disease | / |
| Congenital Heart Adolescent and Teenager Questionnaire (CHAT)94 | Multidimensional | Congenital heart disease | / |
| ConQol95 | Multidimensional | Congenital heart disease | / |
| Health Behavior Scale—Congenital Heart Disease29 | Behaviour | Congenital heart disease | / |
| Heart failure and transplantation | |||
| Cardiac Health Profile of Congestive Heart Failure (CHPchf)96 | Multidimensional | Heart failure | −97 |
| Care-Related Quality of Life survey for Chronic Heart Failure (CaReQol CHF)98 | Multidimensional | Heart failure | −33 |
| Chronic Heart Failure Assessment Tool (CHAT)99 | Multidimensional | Heart failure | −33,97,100 |
| Chronic Heart Failure-PRO Measure (CHF-PROM)101 | Multidimensional | Heart failure | +33 |
| Chronic Heart Failure Questionnaire (CHQ/CHFQ)102 | Multidimensional | Heart failure | −33,97,100,103 |
| Heart Failure-Functional Status Assessment (HF-FSA)104 | Multidimensional | Heart failure | −33 |
| Heart Failure Symptom Checklist105 | Multidimensional | Heart failure | / |
| Kansas City Cardiomyopathy Questionnaire (KCCQ)106 | Multidimensional | Heart failure | ++33,97 |
| Knowledge, attitude, self-care practice and HRQoL of Heart Failure patients (KAPQ-HF)107 | Multidimensional | Heart failure | +33 |
| Left Ventricular Dysfunction Questionnaire (LVD-36)108 | Multidimensional | Heart failure | +33,100,103 |
| MD Anderson Symptom Inventory e Heart Failure (MDASI-HF)109 | Multidimensional | Heart failure | −33 |
| Minnesota Living with Heart Failure (MLHF)26 | Multidimensional | Heart failure | +33,97,100,103 |
| Patient-Reported Outcomes Measurement Information System-Plus-Heart Failure (PROMIS-Plus-HF)110 | Multidimensional | Heart failure | +33 |
| Quality of Life Questionnaire in Severe Heart Failure (QLQ-SHF)111 | Multidimensional | Heart failure | −33,97,103 |
| Short version of the Kansas City Cardiomyopathy Questionnaire (KCCQ-12)112 | Multidimensional | Heart failure | / |
| Traditional Chinese Medicine inquiry (TCM inquiry)113 | Multidimensional | Heart failure | / |
| Heart Transplant Stressor Scale114 | Multidimensional | Heart transplantation | / |
| Rating Question Form115 | Multidimensional | Heart transplantation | / |
| Rotterdam Quality of Life Questionnaire116 | Multidimensional | Heart transplantation | / |
| LVAD Stressor Scale (modified)117 | Multidimensional | LVAD | / |
| Quality of Life with a Ventricular Assistive Device Questionnaire (QOLVAD)118 | Multidimensional | LVAD | −33 |
| Heart Failure Somatic Awareness Scale (HFSAS)119 | Symptoms | Heart failure | −33,46 |
| Heart Failure Somatic Perception Scale (HFSPS)120 | Symptoms | Heart failure | −46 |
| Memorial Symptom Assessment Scale-Heart Failure (MSAS-HF)121 | Symptoms | Heart failure | −33,46 |
| San Diego Heart Failure Questionnaire (SDHFQ)122 | Symptoms | Heart failure | −33,100 |
| Symptom Checklist (SCL)123 | Symptoms | Heart failure | −46 |
| Symptom Status Questionnaire—Heart Failure (SSQ-HF)124 | Symptoms | Heart failure | −46 |
| Heart Failure Functional Status Inventory (HFFSI)125 | Symptoms; Functional capabilities | Heart failure | −33,100 |
| European Heart Failure Self-care Behaviour Scale (EHFScBS)126,127 | Self-care | Heart failure | +128,129 |
| Evaluation Scale for Self-monitoring by Patients with Chronic Heart Failure (ESSMHF)130 | Self-care | Heart failure | −128 |
| Self-care of Heart Failure Index (SCHFI)131 | Self-care | Heart failure | +128 |
| Spiritual Self-care Practice Scale (SSCPS)132 | Self-care | Heart failure | −128 |
| Valvular diseases | |||
| Heart Valve Disease Impact on daily life (IDCV)133 | Multidimensional | Heart valve disease | −33 |
| Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ)134 | Multidimensional | SAVR/TAVI | −33 |
| Blood pressure | |||
| Impact of Syncope on Quality of Life (ISQL)135 | Multidimensional | Syncope | −33 |
| Orthostatic Hypotension Questionnaire (OHQ)136 | Multidimensional | Hypotension | +33 |
| Quality of Life Instruments for Chronic Diseases—Hypertension (QLICH-HY)137 | Multidimensional | Hypertension | |
| Hill-Bone Compliance Scale138 | Medication adherence | Hypertension | −139 |
| Treatment Adherence Questionnaire for Patients with Hypertension (TAQPH)140 | Medication adherence | Hypertension | −139 |
| Therapeutic Adherence Scale for Hypertensive Patients (TASHP)141 | Medication adherence | Hypertension | −139 |
| Hypertension Self-Care Profile (HBP SCP)142 | Self-care | Hypertension | / |
| Name . | Domain . | Developed for . | Level of support . |
|---|---|---|---|
| Cardiac patients | |||
| Cardiac Event Threat Questionnaire (CTQ)31 | Multidimensional | Cardiac patients | / |
| Cardiac Health Profile (CHP)32 | Multidimensional | Cardiac patients | −33 |
| LifeWare Cardiac Assessment Index (LIFEWARE CAI)34 | Multidimensional | Cardiac patients | −33 |
| Multidimensional Index of Life Quality (MILQ)35 | Multidimensional | Cardiac patients | +33 |
| Quality of Life Index-Cardiac Version (QLI-CV)36 | Multidimensional | Cardiac patients | −33 |
| Duke Activity Status Index (DASI)37 | Physical functioning | Cardiac patients | / |
| Specific Activity Scale38 | Physical functioning | Cardiac patients | / |
| Cardiac anxiety questionnaire39 | Anxiety | Cardiac patients | / |
| Cardiac Depression Scale (CDS)40 | Depression | Cardiac patients | / |
| Cardiac distress inventory41 | Psychological functioning | Cardiac patients | / |
| Arrhythmias and electrophysiology | |||
| Patient Perception of Arrhythmia Questionnaire (PPAQ)42 | Multidimensional | Arrhythmias | −33 |
| AF643,44 | Multidimensional | Atrial fibrillation | −33,45,46 |
| AFImpact47 | Multidimensional | Atrial fibrillation | −33 |
| AF-QoL48 | Multidimensional | Atrial fibrillation | −33,45 |
| Atrial Fibrillation Effect on QualiTy-of-Life (AFEQT)49 | Multidimensional | Atrial fibrillation | +33,45 |
| Atrial Fibrillation Quality of Life Questionnaire (AFQLQ)50 | Multidimensional | Atrial fibrillation | −33,45,51 |
| Quality of life in AF patients (QLAF)52 | Multidimensional | Atrial fibrillation | −33,45 |
| University of Toronto Atrial Fibrillation Severity Scale (AFSS)53 | Multidimensional | Atrial fibrillation | −46,51 |
| Cardiff Cardiac Ablation PROM (C-CAP)54,55 | Multidimensional | Pre- and post-ablation | / |
| Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia (ASTA)56 | Symptoms | Arrhythmias | −33,46,51 |
| Umeå 22 Arrhythmia Questions (U22)57 | Symptoms | Arrhythmias | −46 |
| Canadian Cardiovascular Society-Severity of Atrial Fibrillation (CCS-SAF)58 | Symptoms | Atrial fibrillation | −46 |
| Mayo Atrial Fibrillation-Specific Symptom Inventory (MAFSI)59 | Symptoms | Atrial fibrillation | −46 |
| Symptom Checklist—Frequency and Severity Scale (SCL) aka Toronto AF Symptoms Check List60 | Symptoms | Atrial fibrillation | −51 |
| Knowledge, Attitude, and Behaviour questionnaire to patients with Atrial Fibrillation undergoing Radiofrequency Catheter Ablation61 | Self-management | Atrial fibrillation | / |
| Knowledge and self-management tool62 | Self-management | Atrial fibrillation | / |
| VALIOSA (Satisfaction with remote cardiac monitoring)63 | Experience with care | Implanted cardiac devices | / |
| Ischaemic heart disease | |||
| Modified Postoperative Recovery Profile questionnaire re (PRP-CABG)64 | Multidimensional | CABG | / |
| Coronary Revascularisation Outcome Questionnaire (CROQ)65 | Multidimensional | CABG or PTCA | +33 |
| Angina Pectoris Quality of Life Questionnaire (APQLQ)66 | Multidimensional | Ischaemic heart disease | +33 |
| Cardiovascular Limitations and Symptoms Profile (CLASP)67 | Multidimensional | Ischaemic heart disease | +33 |
| Health Complaints Scale (HCS)68 | Multidimensional | Ischaemic heart disease | −33 |
| HeartQol69,70 | Multidimensional | Ischaemic heart disease | +33 |
| Quality of Life Index (QLI)71 | Multidimensional | Ischaemic heart disease | / |
| Quality of Life Instruments for Chronic Diseases—Coronary Heart Disease (QLICD-CHD)72 | Multidimensional | Ischaemic heart disease | +33 |
| Seattle Angina Questionnaire (SAQ19)73 | Multidimensional | Ischaemic heart disease | +33 |
| Short version of the Seattle Angina Questionnaire (SAQ7)74 | Multidimensional | Ischaemic heart disease | / |
| Summary Index for the Assessment of Quality of Life in Angina Pectoris75 | Multidimensional | Ischaemic heart disease | / |
| MacNew Heart Disease Questionnaire (aka QLMI-2)76 | Multidimensional | Myocardial infarction | ++33 |
| Myocardial Infarction Dimensional Assessment Scale (MIDAS)27 | Multidimensional | Myocardial infarction | +33 |
| Quality of Life Questionnaire (QLMI)77 | Multidimensional | Myocardial infarction | / |
| Cardiac Surgery Symptom Inventory (CSSI)78 | Symptoms | CABG | / |
| Cardiac Symptom Survey (CSS)79 | Symptoms | CABG | −46 |
| Heart Surgery Symptom Inventory (HSSI)80 | Symptoms | CABG | / |
| Symptoms of Illness Score (SOIS)81 | Symptoms | CABG/valve surgery | / |
| Symptom Inventory82 | Symptoms | Cardiac surgery | / |
| Cardiac Symptoms Scale83 | Symptoms | Cardiac surgery/PTCA | / |
| Acute Coronary Syndrome (ACS) symptom checklist84 | Symptoms | Acute Coronary Syndrome | −46 |
| McSweeney Acute and Prodromal Myocardial Infarction Symptom Survey (MAPMISS)85 | Symptoms | Ischaemic heart disease | −46 |
| Symptoms of Acute Coronary Syndrome Inventory (SACSI)86 | Symptoms | Acute Coronary Syndrome | −46 |
| Symptom Scale87 | Symptoms | Ischaemic heart disease | / |
| Shortened WHO Rose Angina Questionnaire88 | Symptoms | Ischaemic heart disease | / |
| WHO Rose angina questionnaire30 | Symptoms | Ischaemic heart disease | / |
| Angina-related Limitations at Work Questionnaire (ALWQ)89 | Work-related functioning | Ischaemic heart disease | / |
| Congenital heart disease | |||
| ACHD PRO, Adult Congenital Heart Disease—Patient-Reported Outcome90 | Multidimensional | Congenital heart disease | +33 |
| Congenital Heart Disease—TNO/AZL Adult Quality Of Life (CHD-TAAQOL)91 | Multidimensional | Congenital heart disease | −33 |
| PedsQl cardiac module92 | Multidimensional | Congenital heart disease | / |
| Pediatric Cardiac QOL Inventory93 | Multidimensional | Congenital heart disease | / |
| Congenital Heart Adolescent and Teenager Questionnaire (CHAT)94 | Multidimensional | Congenital heart disease | / |
| ConQol95 | Multidimensional | Congenital heart disease | / |
| Health Behavior Scale—Congenital Heart Disease29 | Behaviour | Congenital heart disease | / |
| Heart failure and transplantation | |||
| Cardiac Health Profile of Congestive Heart Failure (CHPchf)96 | Multidimensional | Heart failure | −97 |
| Care-Related Quality of Life survey for Chronic Heart Failure (CaReQol CHF)98 | Multidimensional | Heart failure | −33 |
| Chronic Heart Failure Assessment Tool (CHAT)99 | Multidimensional | Heart failure | −33,97,100 |
| Chronic Heart Failure-PRO Measure (CHF-PROM)101 | Multidimensional | Heart failure | +33 |
| Chronic Heart Failure Questionnaire (CHQ/CHFQ)102 | Multidimensional | Heart failure | −33,97,100,103 |
| Heart Failure-Functional Status Assessment (HF-FSA)104 | Multidimensional | Heart failure | −33 |
| Heart Failure Symptom Checklist105 | Multidimensional | Heart failure | / |
| Kansas City Cardiomyopathy Questionnaire (KCCQ)106 | Multidimensional | Heart failure | ++33,97 |
| Knowledge, attitude, self-care practice and HRQoL of Heart Failure patients (KAPQ-HF)107 | Multidimensional | Heart failure | +33 |
| Left Ventricular Dysfunction Questionnaire (LVD-36)108 | Multidimensional | Heart failure | +33,100,103 |
| MD Anderson Symptom Inventory e Heart Failure (MDASI-HF)109 | Multidimensional | Heart failure | −33 |
| Minnesota Living with Heart Failure (MLHF)26 | Multidimensional | Heart failure | +33,97,100,103 |
| Patient-Reported Outcomes Measurement Information System-Plus-Heart Failure (PROMIS-Plus-HF)110 | Multidimensional | Heart failure | +33 |
| Quality of Life Questionnaire in Severe Heart Failure (QLQ-SHF)111 | Multidimensional | Heart failure | −33,97,103 |
| Short version of the Kansas City Cardiomyopathy Questionnaire (KCCQ-12)112 | Multidimensional | Heart failure | / |
| Traditional Chinese Medicine inquiry (TCM inquiry)113 | Multidimensional | Heart failure | / |
| Heart Transplant Stressor Scale114 | Multidimensional | Heart transplantation | / |
| Rating Question Form115 | Multidimensional | Heart transplantation | / |
| Rotterdam Quality of Life Questionnaire116 | Multidimensional | Heart transplantation | / |
| LVAD Stressor Scale (modified)117 | Multidimensional | LVAD | / |
| Quality of Life with a Ventricular Assistive Device Questionnaire (QOLVAD)118 | Multidimensional | LVAD | −33 |
| Heart Failure Somatic Awareness Scale (HFSAS)119 | Symptoms | Heart failure | −33,46 |
| Heart Failure Somatic Perception Scale (HFSPS)120 | Symptoms | Heart failure | −46 |
| Memorial Symptom Assessment Scale-Heart Failure (MSAS-HF)121 | Symptoms | Heart failure | −33,46 |
| San Diego Heart Failure Questionnaire (SDHFQ)122 | Symptoms | Heart failure | −33,100 |
| Symptom Checklist (SCL)123 | Symptoms | Heart failure | −46 |
| Symptom Status Questionnaire—Heart Failure (SSQ-HF)124 | Symptoms | Heart failure | −46 |
| Heart Failure Functional Status Inventory (HFFSI)125 | Symptoms; Functional capabilities | Heart failure | −33,100 |
| European Heart Failure Self-care Behaviour Scale (EHFScBS)126,127 | Self-care | Heart failure | +128,129 |
| Evaluation Scale for Self-monitoring by Patients with Chronic Heart Failure (ESSMHF)130 | Self-care | Heart failure | −128 |
| Self-care of Heart Failure Index (SCHFI)131 | Self-care | Heart failure | +128 |
| Spiritual Self-care Practice Scale (SSCPS)132 | Self-care | Heart failure | −128 |
| Valvular diseases | |||
| Heart Valve Disease Impact on daily life (IDCV)133 | Multidimensional | Heart valve disease | −33 |
| Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ)134 | Multidimensional | SAVR/TAVI | −33 |
| Blood pressure | |||
| Impact of Syncope on Quality of Life (ISQL)135 | Multidimensional | Syncope | −33 |
| Orthostatic Hypotension Questionnaire (OHQ)136 | Multidimensional | Hypotension | +33 |
| Quality of Life Instruments for Chronic Diseases—Hypertension (QLICH-HY)137 | Multidimensional | Hypertension | |
| Hill-Bone Compliance Scale138 | Medication adherence | Hypertension | −139 |
| Treatment Adherence Questionnaire for Patients with Hypertension (TAQPH)140 | Medication adherence | Hypertension | −139 |
| Therapeutic Adherence Scale for Hypertensive Patients (TASHP)141 | Medication adherence | Hypertension | −139 |
| Hypertension Self-Care Profile (HBP SCP)142 | Self-care | Hypertension | / |
AF, Atrial Fibrillation; CABG, Coronary Artery Bypass Grafting; DS, domain-specific; ICD, Implantable Cardioverter Defibrillator; LVAD, Left Ventricular Assist Device; PTCA, Percutaneous Transluminal Coronary Angioplasty; SC, Single construct; SAVR, Surgical Aortic Valve Replacement; TAVI, Transcatheter Aortic Valve Implantation Level of support; /, psychometric properties not evaluated any systematic review; −, the cited systematic review indicated that none or only some of the psychometric properties of this instrument have met COSMIN standards; +, systematic review indicated support for most psychometric properties; ++, systematic review indicated support for all psychometric properties.
Disease-specific PROMs (multidimensional or domain-specific) developed for cardiovascular patient populations
| Name . | Domain . | Developed for . | Level of support . |
|---|---|---|---|
| Cardiac patients | |||
| Cardiac Event Threat Questionnaire (CTQ)31 | Multidimensional | Cardiac patients | / |
| Cardiac Health Profile (CHP)32 | Multidimensional | Cardiac patients | −33 |
| LifeWare Cardiac Assessment Index (LIFEWARE CAI)34 | Multidimensional | Cardiac patients | −33 |
| Multidimensional Index of Life Quality (MILQ)35 | Multidimensional | Cardiac patients | +33 |
| Quality of Life Index-Cardiac Version (QLI-CV)36 | Multidimensional | Cardiac patients | −33 |
| Duke Activity Status Index (DASI)37 | Physical functioning | Cardiac patients | / |
| Specific Activity Scale38 | Physical functioning | Cardiac patients | / |
| Cardiac anxiety questionnaire39 | Anxiety | Cardiac patients | / |
| Cardiac Depression Scale (CDS)40 | Depression | Cardiac patients | / |
| Cardiac distress inventory41 | Psychological functioning | Cardiac patients | / |
| Arrhythmias and electrophysiology | |||
| Patient Perception of Arrhythmia Questionnaire (PPAQ)42 | Multidimensional | Arrhythmias | −33 |
| AF643,44 | Multidimensional | Atrial fibrillation | −33,45,46 |
| AFImpact47 | Multidimensional | Atrial fibrillation | −33 |
| AF-QoL48 | Multidimensional | Atrial fibrillation | −33,45 |
| Atrial Fibrillation Effect on QualiTy-of-Life (AFEQT)49 | Multidimensional | Atrial fibrillation | +33,45 |
| Atrial Fibrillation Quality of Life Questionnaire (AFQLQ)50 | Multidimensional | Atrial fibrillation | −33,45,51 |
| Quality of life in AF patients (QLAF)52 | Multidimensional | Atrial fibrillation | −33,45 |
| University of Toronto Atrial Fibrillation Severity Scale (AFSS)53 | Multidimensional | Atrial fibrillation | −46,51 |
| Cardiff Cardiac Ablation PROM (C-CAP)54,55 | Multidimensional | Pre- and post-ablation | / |
| Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia (ASTA)56 | Symptoms | Arrhythmias | −33,46,51 |
| Umeå 22 Arrhythmia Questions (U22)57 | Symptoms | Arrhythmias | −46 |
| Canadian Cardiovascular Society-Severity of Atrial Fibrillation (CCS-SAF)58 | Symptoms | Atrial fibrillation | −46 |
| Mayo Atrial Fibrillation-Specific Symptom Inventory (MAFSI)59 | Symptoms | Atrial fibrillation | −46 |
| Symptom Checklist—Frequency and Severity Scale (SCL) aka Toronto AF Symptoms Check List60 | Symptoms | Atrial fibrillation | −51 |
| Knowledge, Attitude, and Behaviour questionnaire to patients with Atrial Fibrillation undergoing Radiofrequency Catheter Ablation61 | Self-management | Atrial fibrillation | / |
| Knowledge and self-management tool62 | Self-management | Atrial fibrillation | / |
| VALIOSA (Satisfaction with remote cardiac monitoring)63 | Experience with care | Implanted cardiac devices | / |
| Ischaemic heart disease | |||
| Modified Postoperative Recovery Profile questionnaire re (PRP-CABG)64 | Multidimensional | CABG | / |
| Coronary Revascularisation Outcome Questionnaire (CROQ)65 | Multidimensional | CABG or PTCA | +33 |
| Angina Pectoris Quality of Life Questionnaire (APQLQ)66 | Multidimensional | Ischaemic heart disease | +33 |
| Cardiovascular Limitations and Symptoms Profile (CLASP)67 | Multidimensional | Ischaemic heart disease | +33 |
| Health Complaints Scale (HCS)68 | Multidimensional | Ischaemic heart disease | −33 |
| HeartQol69,70 | Multidimensional | Ischaemic heart disease | +33 |
| Quality of Life Index (QLI)71 | Multidimensional | Ischaemic heart disease | / |
| Quality of Life Instruments for Chronic Diseases—Coronary Heart Disease (QLICD-CHD)72 | Multidimensional | Ischaemic heart disease | +33 |
| Seattle Angina Questionnaire (SAQ19)73 | Multidimensional | Ischaemic heart disease | +33 |
| Short version of the Seattle Angina Questionnaire (SAQ7)74 | Multidimensional | Ischaemic heart disease | / |
| Summary Index for the Assessment of Quality of Life in Angina Pectoris75 | Multidimensional | Ischaemic heart disease | / |
| MacNew Heart Disease Questionnaire (aka QLMI-2)76 | Multidimensional | Myocardial infarction | ++33 |
| Myocardial Infarction Dimensional Assessment Scale (MIDAS)27 | Multidimensional | Myocardial infarction | +33 |
| Quality of Life Questionnaire (QLMI)77 | Multidimensional | Myocardial infarction | / |
| Cardiac Surgery Symptom Inventory (CSSI)78 | Symptoms | CABG | / |
| Cardiac Symptom Survey (CSS)79 | Symptoms | CABG | −46 |
| Heart Surgery Symptom Inventory (HSSI)80 | Symptoms | CABG | / |
| Symptoms of Illness Score (SOIS)81 | Symptoms | CABG/valve surgery | / |
| Symptom Inventory82 | Symptoms | Cardiac surgery | / |
| Cardiac Symptoms Scale83 | Symptoms | Cardiac surgery/PTCA | / |
| Acute Coronary Syndrome (ACS) symptom checklist84 | Symptoms | Acute Coronary Syndrome | −46 |
| McSweeney Acute and Prodromal Myocardial Infarction Symptom Survey (MAPMISS)85 | Symptoms | Ischaemic heart disease | −46 |
| Symptoms of Acute Coronary Syndrome Inventory (SACSI)86 | Symptoms | Acute Coronary Syndrome | −46 |
| Symptom Scale87 | Symptoms | Ischaemic heart disease | / |
| Shortened WHO Rose Angina Questionnaire88 | Symptoms | Ischaemic heart disease | / |
| WHO Rose angina questionnaire30 | Symptoms | Ischaemic heart disease | / |
| Angina-related Limitations at Work Questionnaire (ALWQ)89 | Work-related functioning | Ischaemic heart disease | / |
| Congenital heart disease | |||
| ACHD PRO, Adult Congenital Heart Disease—Patient-Reported Outcome90 | Multidimensional | Congenital heart disease | +33 |
| Congenital Heart Disease—TNO/AZL Adult Quality Of Life (CHD-TAAQOL)91 | Multidimensional | Congenital heart disease | −33 |
| PedsQl cardiac module92 | Multidimensional | Congenital heart disease | / |
| Pediatric Cardiac QOL Inventory93 | Multidimensional | Congenital heart disease | / |
| Congenital Heart Adolescent and Teenager Questionnaire (CHAT)94 | Multidimensional | Congenital heart disease | / |
| ConQol95 | Multidimensional | Congenital heart disease | / |
| Health Behavior Scale—Congenital Heart Disease29 | Behaviour | Congenital heart disease | / |
| Heart failure and transplantation | |||
| Cardiac Health Profile of Congestive Heart Failure (CHPchf)96 | Multidimensional | Heart failure | −97 |
| Care-Related Quality of Life survey for Chronic Heart Failure (CaReQol CHF)98 | Multidimensional | Heart failure | −33 |
| Chronic Heart Failure Assessment Tool (CHAT)99 | Multidimensional | Heart failure | −33,97,100 |
| Chronic Heart Failure-PRO Measure (CHF-PROM)101 | Multidimensional | Heart failure | +33 |
| Chronic Heart Failure Questionnaire (CHQ/CHFQ)102 | Multidimensional | Heart failure | −33,97,100,103 |
| Heart Failure-Functional Status Assessment (HF-FSA)104 | Multidimensional | Heart failure | −33 |
| Heart Failure Symptom Checklist105 | Multidimensional | Heart failure | / |
| Kansas City Cardiomyopathy Questionnaire (KCCQ)106 | Multidimensional | Heart failure | ++33,97 |
| Knowledge, attitude, self-care practice and HRQoL of Heart Failure patients (KAPQ-HF)107 | Multidimensional | Heart failure | +33 |
| Left Ventricular Dysfunction Questionnaire (LVD-36)108 | Multidimensional | Heart failure | +33,100,103 |
| MD Anderson Symptom Inventory e Heart Failure (MDASI-HF)109 | Multidimensional | Heart failure | −33 |
| Minnesota Living with Heart Failure (MLHF)26 | Multidimensional | Heart failure | +33,97,100,103 |
| Patient-Reported Outcomes Measurement Information System-Plus-Heart Failure (PROMIS-Plus-HF)110 | Multidimensional | Heart failure | +33 |
| Quality of Life Questionnaire in Severe Heart Failure (QLQ-SHF)111 | Multidimensional | Heart failure | −33,97,103 |
| Short version of the Kansas City Cardiomyopathy Questionnaire (KCCQ-12)112 | Multidimensional | Heart failure | / |
| Traditional Chinese Medicine inquiry (TCM inquiry)113 | Multidimensional | Heart failure | / |
| Heart Transplant Stressor Scale114 | Multidimensional | Heart transplantation | / |
| Rating Question Form115 | Multidimensional | Heart transplantation | / |
| Rotterdam Quality of Life Questionnaire116 | Multidimensional | Heart transplantation | / |
| LVAD Stressor Scale (modified)117 | Multidimensional | LVAD | / |
| Quality of Life with a Ventricular Assistive Device Questionnaire (QOLVAD)118 | Multidimensional | LVAD | −33 |
| Heart Failure Somatic Awareness Scale (HFSAS)119 | Symptoms | Heart failure | −33,46 |
| Heart Failure Somatic Perception Scale (HFSPS)120 | Symptoms | Heart failure | −46 |
| Memorial Symptom Assessment Scale-Heart Failure (MSAS-HF)121 | Symptoms | Heart failure | −33,46 |
| San Diego Heart Failure Questionnaire (SDHFQ)122 | Symptoms | Heart failure | −33,100 |
| Symptom Checklist (SCL)123 | Symptoms | Heart failure | −46 |
| Symptom Status Questionnaire—Heart Failure (SSQ-HF)124 | Symptoms | Heart failure | −46 |
| Heart Failure Functional Status Inventory (HFFSI)125 | Symptoms; Functional capabilities | Heart failure | −33,100 |
| European Heart Failure Self-care Behaviour Scale (EHFScBS)126,127 | Self-care | Heart failure | +128,129 |
| Evaluation Scale for Self-monitoring by Patients with Chronic Heart Failure (ESSMHF)130 | Self-care | Heart failure | −128 |
| Self-care of Heart Failure Index (SCHFI)131 | Self-care | Heart failure | +128 |
| Spiritual Self-care Practice Scale (SSCPS)132 | Self-care | Heart failure | −128 |
| Valvular diseases | |||
| Heart Valve Disease Impact on daily life (IDCV)133 | Multidimensional | Heart valve disease | −33 |
| Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ)134 | Multidimensional | SAVR/TAVI | −33 |
| Blood pressure | |||
| Impact of Syncope on Quality of Life (ISQL)135 | Multidimensional | Syncope | −33 |
| Orthostatic Hypotension Questionnaire (OHQ)136 | Multidimensional | Hypotension | +33 |
| Quality of Life Instruments for Chronic Diseases—Hypertension (QLICH-HY)137 | Multidimensional | Hypertension | |
| Hill-Bone Compliance Scale138 | Medication adherence | Hypertension | −139 |
| Treatment Adherence Questionnaire for Patients with Hypertension (TAQPH)140 | Medication adherence | Hypertension | −139 |
| Therapeutic Adherence Scale for Hypertensive Patients (TASHP)141 | Medication adherence | Hypertension | −139 |
| Hypertension Self-Care Profile (HBP SCP)142 | Self-care | Hypertension | / |
| Name . | Domain . | Developed for . | Level of support . |
|---|---|---|---|
| Cardiac patients | |||
| Cardiac Event Threat Questionnaire (CTQ)31 | Multidimensional | Cardiac patients | / |
| Cardiac Health Profile (CHP)32 | Multidimensional | Cardiac patients | −33 |
| LifeWare Cardiac Assessment Index (LIFEWARE CAI)34 | Multidimensional | Cardiac patients | −33 |
| Multidimensional Index of Life Quality (MILQ)35 | Multidimensional | Cardiac patients | +33 |
| Quality of Life Index-Cardiac Version (QLI-CV)36 | Multidimensional | Cardiac patients | −33 |
| Duke Activity Status Index (DASI)37 | Physical functioning | Cardiac patients | / |
| Specific Activity Scale38 | Physical functioning | Cardiac patients | / |
| Cardiac anxiety questionnaire39 | Anxiety | Cardiac patients | / |
| Cardiac Depression Scale (CDS)40 | Depression | Cardiac patients | / |
| Cardiac distress inventory41 | Psychological functioning | Cardiac patients | / |
| Arrhythmias and electrophysiology | |||
| Patient Perception of Arrhythmia Questionnaire (PPAQ)42 | Multidimensional | Arrhythmias | −33 |
| AF643,44 | Multidimensional | Atrial fibrillation | −33,45,46 |
| AFImpact47 | Multidimensional | Atrial fibrillation | −33 |
| AF-QoL48 | Multidimensional | Atrial fibrillation | −33,45 |
| Atrial Fibrillation Effect on QualiTy-of-Life (AFEQT)49 | Multidimensional | Atrial fibrillation | +33,45 |
| Atrial Fibrillation Quality of Life Questionnaire (AFQLQ)50 | Multidimensional | Atrial fibrillation | −33,45,51 |
| Quality of life in AF patients (QLAF)52 | Multidimensional | Atrial fibrillation | −33,45 |
| University of Toronto Atrial Fibrillation Severity Scale (AFSS)53 | Multidimensional | Atrial fibrillation | −46,51 |
| Cardiff Cardiac Ablation PROM (C-CAP)54,55 | Multidimensional | Pre- and post-ablation | / |
| Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia (ASTA)56 | Symptoms | Arrhythmias | −33,46,51 |
| Umeå 22 Arrhythmia Questions (U22)57 | Symptoms | Arrhythmias | −46 |
| Canadian Cardiovascular Society-Severity of Atrial Fibrillation (CCS-SAF)58 | Symptoms | Atrial fibrillation | −46 |
| Mayo Atrial Fibrillation-Specific Symptom Inventory (MAFSI)59 | Symptoms | Atrial fibrillation | −46 |
| Symptom Checklist—Frequency and Severity Scale (SCL) aka Toronto AF Symptoms Check List60 | Symptoms | Atrial fibrillation | −51 |
| Knowledge, Attitude, and Behaviour questionnaire to patients with Atrial Fibrillation undergoing Radiofrequency Catheter Ablation61 | Self-management | Atrial fibrillation | / |
| Knowledge and self-management tool62 | Self-management | Atrial fibrillation | / |
| VALIOSA (Satisfaction with remote cardiac monitoring)63 | Experience with care | Implanted cardiac devices | / |
| Ischaemic heart disease | |||
| Modified Postoperative Recovery Profile questionnaire re (PRP-CABG)64 | Multidimensional | CABG | / |
| Coronary Revascularisation Outcome Questionnaire (CROQ)65 | Multidimensional | CABG or PTCA | +33 |
| Angina Pectoris Quality of Life Questionnaire (APQLQ)66 | Multidimensional | Ischaemic heart disease | +33 |
| Cardiovascular Limitations and Symptoms Profile (CLASP)67 | Multidimensional | Ischaemic heart disease | +33 |
| Health Complaints Scale (HCS)68 | Multidimensional | Ischaemic heart disease | −33 |
| HeartQol69,70 | Multidimensional | Ischaemic heart disease | +33 |
| Quality of Life Index (QLI)71 | Multidimensional | Ischaemic heart disease | / |
| Quality of Life Instruments for Chronic Diseases—Coronary Heart Disease (QLICD-CHD)72 | Multidimensional | Ischaemic heart disease | +33 |
| Seattle Angina Questionnaire (SAQ19)73 | Multidimensional | Ischaemic heart disease | +33 |
| Short version of the Seattle Angina Questionnaire (SAQ7)74 | Multidimensional | Ischaemic heart disease | / |
| Summary Index for the Assessment of Quality of Life in Angina Pectoris75 | Multidimensional | Ischaemic heart disease | / |
| MacNew Heart Disease Questionnaire (aka QLMI-2)76 | Multidimensional | Myocardial infarction | ++33 |
| Myocardial Infarction Dimensional Assessment Scale (MIDAS)27 | Multidimensional | Myocardial infarction | +33 |
| Quality of Life Questionnaire (QLMI)77 | Multidimensional | Myocardial infarction | / |
| Cardiac Surgery Symptom Inventory (CSSI)78 | Symptoms | CABG | / |
| Cardiac Symptom Survey (CSS)79 | Symptoms | CABG | −46 |
| Heart Surgery Symptom Inventory (HSSI)80 | Symptoms | CABG | / |
| Symptoms of Illness Score (SOIS)81 | Symptoms | CABG/valve surgery | / |
| Symptom Inventory82 | Symptoms | Cardiac surgery | / |
| Cardiac Symptoms Scale83 | Symptoms | Cardiac surgery/PTCA | / |
| Acute Coronary Syndrome (ACS) symptom checklist84 | Symptoms | Acute Coronary Syndrome | −46 |
| McSweeney Acute and Prodromal Myocardial Infarction Symptom Survey (MAPMISS)85 | Symptoms | Ischaemic heart disease | −46 |
| Symptoms of Acute Coronary Syndrome Inventory (SACSI)86 | Symptoms | Acute Coronary Syndrome | −46 |
| Symptom Scale87 | Symptoms | Ischaemic heart disease | / |
| Shortened WHO Rose Angina Questionnaire88 | Symptoms | Ischaemic heart disease | / |
| WHO Rose angina questionnaire30 | Symptoms | Ischaemic heart disease | / |
| Angina-related Limitations at Work Questionnaire (ALWQ)89 | Work-related functioning | Ischaemic heart disease | / |
| Congenital heart disease | |||
| ACHD PRO, Adult Congenital Heart Disease—Patient-Reported Outcome90 | Multidimensional | Congenital heart disease | +33 |
| Congenital Heart Disease—TNO/AZL Adult Quality Of Life (CHD-TAAQOL)91 | Multidimensional | Congenital heart disease | −33 |
| PedsQl cardiac module92 | Multidimensional | Congenital heart disease | / |
| Pediatric Cardiac QOL Inventory93 | Multidimensional | Congenital heart disease | / |
| Congenital Heart Adolescent and Teenager Questionnaire (CHAT)94 | Multidimensional | Congenital heart disease | / |
| ConQol95 | Multidimensional | Congenital heart disease | / |
| Health Behavior Scale—Congenital Heart Disease29 | Behaviour | Congenital heart disease | / |
| Heart failure and transplantation | |||
| Cardiac Health Profile of Congestive Heart Failure (CHPchf)96 | Multidimensional | Heart failure | −97 |
| Care-Related Quality of Life survey for Chronic Heart Failure (CaReQol CHF)98 | Multidimensional | Heart failure | −33 |
| Chronic Heart Failure Assessment Tool (CHAT)99 | Multidimensional | Heart failure | −33,97,100 |
| Chronic Heart Failure-PRO Measure (CHF-PROM)101 | Multidimensional | Heart failure | +33 |
| Chronic Heart Failure Questionnaire (CHQ/CHFQ)102 | Multidimensional | Heart failure | −33,97,100,103 |
| Heart Failure-Functional Status Assessment (HF-FSA)104 | Multidimensional | Heart failure | −33 |
| Heart Failure Symptom Checklist105 | Multidimensional | Heart failure | / |
| Kansas City Cardiomyopathy Questionnaire (KCCQ)106 | Multidimensional | Heart failure | ++33,97 |
| Knowledge, attitude, self-care practice and HRQoL of Heart Failure patients (KAPQ-HF)107 | Multidimensional | Heart failure | +33 |
| Left Ventricular Dysfunction Questionnaire (LVD-36)108 | Multidimensional | Heart failure | +33,100,103 |
| MD Anderson Symptom Inventory e Heart Failure (MDASI-HF)109 | Multidimensional | Heart failure | −33 |
| Minnesota Living with Heart Failure (MLHF)26 | Multidimensional | Heart failure | +33,97,100,103 |
| Patient-Reported Outcomes Measurement Information System-Plus-Heart Failure (PROMIS-Plus-HF)110 | Multidimensional | Heart failure | +33 |
| Quality of Life Questionnaire in Severe Heart Failure (QLQ-SHF)111 | Multidimensional | Heart failure | −33,97,103 |
| Short version of the Kansas City Cardiomyopathy Questionnaire (KCCQ-12)112 | Multidimensional | Heart failure | / |
| Traditional Chinese Medicine inquiry (TCM inquiry)113 | Multidimensional | Heart failure | / |
| Heart Transplant Stressor Scale114 | Multidimensional | Heart transplantation | / |
| Rating Question Form115 | Multidimensional | Heart transplantation | / |
| Rotterdam Quality of Life Questionnaire116 | Multidimensional | Heart transplantation | / |
| LVAD Stressor Scale (modified)117 | Multidimensional | LVAD | / |
| Quality of Life with a Ventricular Assistive Device Questionnaire (QOLVAD)118 | Multidimensional | LVAD | −33 |
| Heart Failure Somatic Awareness Scale (HFSAS)119 | Symptoms | Heart failure | −33,46 |
| Heart Failure Somatic Perception Scale (HFSPS)120 | Symptoms | Heart failure | −46 |
| Memorial Symptom Assessment Scale-Heart Failure (MSAS-HF)121 | Symptoms | Heart failure | −33,46 |
| San Diego Heart Failure Questionnaire (SDHFQ)122 | Symptoms | Heart failure | −33,100 |
| Symptom Checklist (SCL)123 | Symptoms | Heart failure | −46 |
| Symptom Status Questionnaire—Heart Failure (SSQ-HF)124 | Symptoms | Heart failure | −46 |
| Heart Failure Functional Status Inventory (HFFSI)125 | Symptoms; Functional capabilities | Heart failure | −33,100 |
| European Heart Failure Self-care Behaviour Scale (EHFScBS)126,127 | Self-care | Heart failure | +128,129 |
| Evaluation Scale for Self-monitoring by Patients with Chronic Heart Failure (ESSMHF)130 | Self-care | Heart failure | −128 |
| Self-care of Heart Failure Index (SCHFI)131 | Self-care | Heart failure | +128 |
| Spiritual Self-care Practice Scale (SSCPS)132 | Self-care | Heart failure | −128 |
| Valvular diseases | |||
| Heart Valve Disease Impact on daily life (IDCV)133 | Multidimensional | Heart valve disease | −33 |
| Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ)134 | Multidimensional | SAVR/TAVI | −33 |
| Blood pressure | |||
| Impact of Syncope on Quality of Life (ISQL)135 | Multidimensional | Syncope | −33 |
| Orthostatic Hypotension Questionnaire (OHQ)136 | Multidimensional | Hypotension | +33 |
| Quality of Life Instruments for Chronic Diseases—Hypertension (QLICH-HY)137 | Multidimensional | Hypertension | |
| Hill-Bone Compliance Scale138 | Medication adherence | Hypertension | −139 |
| Treatment Adherence Questionnaire for Patients with Hypertension (TAQPH)140 | Medication adherence | Hypertension | −139 |
| Therapeutic Adherence Scale for Hypertensive Patients (TASHP)141 | Medication adherence | Hypertension | −139 |
| Hypertension Self-Care Profile (HBP SCP)142 | Self-care | Hypertension | / |
AF, Atrial Fibrillation; CABG, Coronary Artery Bypass Grafting; DS, domain-specific; ICD, Implantable Cardioverter Defibrillator; LVAD, Left Ventricular Assist Device; PTCA, Percutaneous Transluminal Coronary Angioplasty; SC, Single construct; SAVR, Surgical Aortic Valve Replacement; TAVI, Transcatheter Aortic Valve Implantation Level of support; /, psychometric properties not evaluated any systematic review; −, the cited systematic review indicated that none or only some of the psychometric properties of this instrument have met COSMIN standards; +, systematic review indicated support for most psychometric properties; ++, systematic review indicated support for all psychometric properties.
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