Table 1 Open in new tab Characteristics...

Characteristics

Total (N = 29)

Adults with intersex/diverse sex development (dsd) conditions (n = 6)

Parents of children with intersex/dsd conditions (n = 5)

Experts in the field (eg, psychologists, medical doctors) (n = 18)

Age (y); Mdn (range)

47.9; 46.5 (31–80)

50.8; 45.5 (42–68)

45.2; 48.0 (38–50)

47.6; 47.0 (31–80)

Gender (n/N)

Female

Gender identity

13/29

1/6

2/5

10/18

Gender role

15/29

2/6

2/5

11/18

Gender of birth certificate

20/29

5/6

4/5

11/18

Male

Gender identity

6/29

0/6

1/5

5/18

Gender role

8/29

1/6

1/5

6/18

Gender of birth certificate

9/29

1/6

1/5

7/18

Male and female

Gender identity

1/29

1/6

0/5

0/18

Gender role

1/29

0/6

1/5

0/18

Other

Gender identity

6/29

3/6

2/5

1/18

Gender role

3/29

2/6

1/5

0/18

No specification

Gender identity

3/29

1/6

0/5

2/18

Gender role

2/29

1/6

0/5

1/18

Education (n/N)

No school-leaving qualification

0/29

0/6

0/5

0/18

Completion of 9 or 10 years of schooling (corresponding to German “Hauptschulabschluss” or “Realschulabchsluss”)

1/29

1/6

0/5

0/18

High-school examination qualifying for university entrance or university of applied sciences entrance

4/29

4/6

0/5

0/18

University degree

23/29

1/6

4/5

18/18

No specification

1/29

0/6

1/5

0/18

Personal experience with… (n/N)

Congenital adrenal hyperplasia

10/29

1/6

0/5

9/18

Disturbances of the androgenbiosynthesis (eg, 17 beta hydroxysteroid deficiency, 5 alpha reductase deficiency)

7/29

1/6

1/5

5/18

Gonadal dysgenesis

9/29

3/6

1/5

5/18

Klinefelter syndrome

8/29

1/6

0/5

7/18

Complete androgen insensitivity syndrome/androgen insensitivity syndrome

13/29

2/6

3/5

8/18

Ovotesticular dsd

5/29

1/6

0/5

4/18

Partial androgen insensitivity syndrome

10/29

2/6

1/5

7/18

Turner syndrome

7/29

1/6

1/5

5/18

Unknown intersex/dsd condition

7/29

1/6

2/5

4/18

I cannot answer this question.

5/29

1/6

0/5

4/18

I do not want to answer this question.

1/29

0/6

1/5

0/18

Another intersex/dsd condition

4/29

1/6

0/5

3/18

Table 1

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Characteristics of the participants

Characteristics	Total (N = 29)	Adults with intersex/diverse sex development (dsd) conditions (n = 6)	Parents of children with intersex/dsd conditions (n = 5)	Experts in the field (eg, psychologists, medical doctors) (n = 18)
Age (y); Mdn (range)	47.9; 46.5 (31–80)	50.8; 45.5 (42–68)	45.2; 48.0 (38–50)	47.6; 47.0 (31–80)
Gender (n/N)
Female
Gender identity	13/29	1/6	2/5	10/18
Gender role	15/29	2/6	2/5	11/18
Gender of birth certificate	20/29	5/6	4/5	11/18
Male
Gender identity	6/29	0/6	1/5	5/18
Gender role	8/29	1/6	1/5	6/18
Gender of birth certificate	9/29	1/6	1/5	7/18
Male and female
Gender identity	1/29	1/6	0/5	0/18
Gender role	1/29	0/6	1/5	0/18
Other
Gender identity	6/29	3/6	2/5	1/18
Gender role	3/29	2/6	1/5	0/18
No specification
Gender identity	3/29	1/6	0/5	2/18
Gender role	2/29	1/6	0/5	1/18
Education (n/N)
No school-leaving qualification	0/29	0/6	0/5	0/18
Completion of 9 or 10 years of schooling (corresponding to German “Hauptschulabschluss” or “Realschulabchsluss”)	1/29	1/6	0/5	0/18
High-school examination qualifying for university entrance or university of applied sciences entrance	4/29	4/6	0/5	0/18
University degree	23/29	1/6	4/5	18/18
No specification	1/29	0/6	1/5	0/18
Personal experience with… (n/N)
Congenital adrenal hyperplasia	10/29	1/6	0/5	9/18
Disturbances of the androgenbiosynthesis (eg, 17 beta hydroxysteroid deficiency, 5 alpha reductase deficiency)	7/29	1/6	1/5	5/18
Gonadal dysgenesis	9/29	3/6	1/5	5/18
Klinefelter syndrome	8/29	1/6	0/5	7/18
Complete androgen insensitivity syndrome/androgen insensitivity syndrome	13/29	2/6	3/5	8/18
Ovotesticular dsd	5/29	1/6	0/5	4/18
Partial androgen insensitivity syndrome	10/29	2/6	1/5	7/18
Turner syndrome	7/29	1/6	1/5	5/18
Unknown intersex/dsd condition	7/29	1/6	2/5	4/18
I cannot answer this question.	5/29	1/6	0/5	4/18
I do not want to answer this question.	1/29	0/6	1/5	0/18
Another intersex/dsd condition	4/29	1/6	0/5	3/18

Characteristics	Total (N = 29)	Adults with intersex/diverse sex development (dsd) conditions (n = 6)	Parents of children with intersex/dsd conditions (n = 5)	Experts in the field (eg, psychologists, medical doctors) (n = 18)
Age (y); Mdn (range)	47.9; 46.5 (31–80)	50.8; 45.5 (42–68)	45.2; 48.0 (38–50)	47.6; 47.0 (31–80)
Gender (n/N)
Female
Gender identity	13/29	1/6	2/5	10/18
Gender role	15/29	2/6	2/5	11/18
Gender of birth certificate	20/29	5/6	4/5	11/18
Male
Gender identity	6/29	0/6	1/5	5/18
Gender role	8/29	1/6	1/5	6/18
Gender of birth certificate	9/29	1/6	1/5	7/18
Male and female
Gender identity	1/29	1/6	0/5	0/18
Gender role	1/29	0/6	1/5	0/18
Other
Gender identity	6/29	3/6	2/5	1/18
Gender role	3/29	2/6	1/5	0/18
No specification
Gender identity	3/29	1/6	0/5	2/18
Gender role	2/29	1/6	0/5	1/18
Education (n/N)
No school-leaving qualification	0/29	0/6	0/5	0/18
Completion of 9 or 10 years of schooling (corresponding to German “Hauptschulabschluss” or “Realschulabchsluss”)	1/29	1/6	0/5	0/18
High-school examination qualifying for university entrance or university of applied sciences entrance	4/29	4/6	0/5	0/18
University degree	23/29	1/6	4/5	18/18
No specification	1/29	0/6	1/5	0/18
Personal experience with… (n/N)
Congenital adrenal hyperplasia	10/29	1/6	0/5	9/18
Disturbances of the androgenbiosynthesis (eg, 17 beta hydroxysteroid deficiency, 5 alpha reductase deficiency)	7/29	1/6	1/5	5/18
Gonadal dysgenesis	9/29	3/6	1/5	5/18
Klinefelter syndrome	8/29	1/6	0/5	7/18
Complete androgen insensitivity syndrome/androgen insensitivity syndrome	13/29	2/6	3/5	8/18
Ovotesticular dsd	5/29	1/6	0/5	4/18
Partial androgen insensitivity syndrome	10/29	2/6	1/5	7/18
Turner syndrome	7/29	1/6	1/5	5/18
Unknown intersex/dsd condition	7/29	1/6	2/5	4/18
I cannot answer this question.	5/29	1/6	0/5	4/18
I do not want to answer this question.	1/29	0/6	1/5	0/18
Another intersex/dsd condition	4/29	1/6	0/5	3/18

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