Table 1
Open in new tab

CKD registry characteristics, as of March 2021

CharacteristicsFrench-speaking BelgiumCzech RepublicFinlandFranceNorwayRomaniaSweden
InitiatorBoard of French-speaking registry (GNFB)Czech Society of Nephrology (CSN)Board of Finnish Registry for Kidney DiseasesBoard of French KRT Registry (REIN)Ministry of HealthRomanian Association of Nephrology, Dialysis and Vascular AccessBoard of Swedish Renal Registry (SRR)
Financial and other support in addition to any support received from the hosting departmentsFederal Ministry of Health (data collection system)Czech Society of NephrologyTo be specified

  • French KRT Registry (REIN; data collection system); and

  • hospitals (labour force for data entry)

Ministry of Health

  • Romanian Association of Nephrology, Dialysis and Vascular Access and

  • Ministry of Health (set-up and maintenance of data collection system) and hospitals (labour force for data entry)

Swedish Association of Local Authorities and Regions and clinic fees
Objectives
 Epidemiological research+++In the future+++
 Clinical research+++−+In the future+
 Health economics research−+−In the future+In the future−
 Quality improvement (QI) through benchmarking+++−+−+a
 Understand access to KRT and conservative care−−−++−−
 Forecast future care needs−−+++In the future+
 Providing data for bundle payment−−−+−−−
Year of start20152009In preparation2019201620182008
Obligatory data collectionNoNoNoOnly for those collecting data for bundle paymentYesYesNo
CKD stages included1–5Serum creatinine >300 µmol/L in men and 250 µmol/L in womenb4–5 (eGFR dropping below 20 mL/min/1.73 m2)4–5 (since 2020 and 2019, respectively)51–54–5 (all centres include patients with eGFR dropping below 30 mL/min/1.73 m2; some centres include from 45 mL/min/1.73 m2)
CKD patients included
 Age rangeAdults onlyAdults onlyNoneAll agesAll agesAll agesAdults only
 N23485816None>2500161515 60147 804
 Per cent coverage of CKD patients treated by nephrologistsUnknown40NAUnknown65–85Unknown75%
Participating centres (n/N)10/3473/115None59/123326/2680/unknown47/48
Publication of annual reportsIn the futureYesIn the futureIn the futureYesYesYes
CharacteristicsFrench-speaking BelgiumCzech RepublicFinlandFranceNorwayRomaniaSweden
InitiatorBoard of French-speaking registry (GNFB)Czech Society of Nephrology (CSN)Board of Finnish Registry for Kidney DiseasesBoard of French KRT Registry (REIN)Ministry of HealthRomanian Association of Nephrology, Dialysis and Vascular AccessBoard of Swedish Renal Registry (SRR)
Financial and other support in addition to any support received from the hosting departmentsFederal Ministry of Health (data collection system)Czech Society of NephrologyTo be specified

  • French KRT Registry (REIN; data collection system); and

  • hospitals (labour force for data entry)

Ministry of Health

  • Romanian Association of Nephrology, Dialysis and Vascular Access and

  • Ministry of Health (set-up and maintenance of data collection system) and hospitals (labour force for data entry)

Swedish Association of Local Authorities and Regions and clinic fees
Objectives
 Epidemiological research+++In the future+++
 Clinical research+++−+In the future+
 Health economics research−+−In the future+In the future−
 Quality improvement (QI) through benchmarking+++−+−+a
 Understand access to KRT and conservative care−−−++−−
 Forecast future care needs−−+++In the future+
 Providing data for bundle payment−−−+−−−
Year of start20152009In preparation2019201620182008
Obligatory data collectionNoNoNoOnly for those collecting data for bundle paymentYesYesNo
CKD stages included1–5Serum creatinine >300 µmol/L in men and 250 µmol/L in womenb4–5 (eGFR dropping below 20 mL/min/1.73 m2)4–5 (since 2020 and 2019, respectively)51–54–5 (all centres include patients with eGFR dropping below 30 mL/min/1.73 m2; some centres include from 45 mL/min/1.73 m2)
CKD patients included
 Age rangeAdults onlyAdults onlyNoneAll agesAll agesAll agesAdults only
 N23485816None>2500161515 60147 804
 Per cent coverage of CKD patients treated by nephrologistsUnknown40NAUnknown65–85Unknown75%
Participating centres (n/N)10/3473/115None59/123326/2680/unknown47/48
Publication of annual reportsIn the futureYesIn the futureIn the futureYesYesYes
a

QI benchmarks: blood pressure (percentage <140/90 mm/Hg), phosphate (percentage <1.6 mmol/L), haemoglobin 10–12 g/dL if on erythropoiesis-stimulating agent, percentage diagnosed with PRD, percentage on angiotensin-converting enzyme inhibitor/angiotensin II recpetor blocker if diabetic kidney disease.

b

eGFR determined by the Chronic Kidney Diease Epidemiology Collaboration equation available for further distribution of CKD stages.

Table 1
Open in new tab

CKD registry characteristics, as of March 2021

CharacteristicsFrench-speaking BelgiumCzech RepublicFinlandFranceNorwayRomaniaSweden
InitiatorBoard of French-speaking registry (GNFB)Czech Society of Nephrology (CSN)Board of Finnish Registry for Kidney DiseasesBoard of French KRT Registry (REIN)Ministry of HealthRomanian Association of Nephrology, Dialysis and Vascular AccessBoard of Swedish Renal Registry (SRR)
Financial and other support in addition to any support received from the hosting departmentsFederal Ministry of Health (data collection system)Czech Society of NephrologyTo be specified

  • French KRT Registry (REIN; data collection system); and

  • hospitals (labour force for data entry)

Ministry of Health

  • Romanian Association of Nephrology, Dialysis and Vascular Access and

  • Ministry of Health (set-up and maintenance of data collection system) and hospitals (labour force for data entry)

Swedish Association of Local Authorities and Regions and clinic fees
Objectives
 Epidemiological research+++In the future+++
 Clinical research+++−+In the future+
 Health economics research−+−In the future+In the future−
 Quality improvement (QI) through benchmarking+++−+−+a
 Understand access to KRT and conservative care−−−++−−
 Forecast future care needs−−+++In the future+
 Providing data for bundle payment−−−+−−−
Year of start20152009In preparation2019201620182008
Obligatory data collectionNoNoNoOnly for those collecting data for bundle paymentYesYesNo
CKD stages included1–5Serum creatinine >300 µmol/L in men and 250 µmol/L in womenb4–5 (eGFR dropping below 20 mL/min/1.73 m2)4–5 (since 2020 and 2019, respectively)51–54–5 (all centres include patients with eGFR dropping below 30 mL/min/1.73 m2; some centres include from 45 mL/min/1.73 m2)
CKD patients included
 Age rangeAdults onlyAdults onlyNoneAll agesAll agesAll agesAdults only
 N23485816None>2500161515 60147 804
 Per cent coverage of CKD patients treated by nephrologistsUnknown40NAUnknown65–85Unknown75%
Participating centres (n/N)10/3473/115None59/123326/2680/unknown47/48
Publication of annual reportsIn the futureYesIn the futureIn the futureYesYesYes
CharacteristicsFrench-speaking BelgiumCzech RepublicFinlandFranceNorwayRomaniaSweden
InitiatorBoard of French-speaking registry (GNFB)Czech Society of Nephrology (CSN)Board of Finnish Registry for Kidney DiseasesBoard of French KRT Registry (REIN)Ministry of HealthRomanian Association of Nephrology, Dialysis and Vascular AccessBoard of Swedish Renal Registry (SRR)
Financial and other support in addition to any support received from the hosting departmentsFederal Ministry of Health (data collection system)Czech Society of NephrologyTo be specified

  • French KRT Registry (REIN; data collection system); and

  • hospitals (labour force for data entry)

Ministry of Health

  • Romanian Association of Nephrology, Dialysis and Vascular Access and

  • Ministry of Health (set-up and maintenance of data collection system) and hospitals (labour force for data entry)

Swedish Association of Local Authorities and Regions and clinic fees
Objectives
 Epidemiological research+++In the future+++
 Clinical research+++−+In the future+
 Health economics research−+−In the future+In the future−
 Quality improvement (QI) through benchmarking+++−+−+a
 Understand access to KRT and conservative care−−−++−−
 Forecast future care needs−−+++In the future+
 Providing data for bundle payment−−−+−−−
Year of start20152009In preparation2019201620182008
Obligatory data collectionNoNoNoOnly for those collecting data for bundle paymentYesYesNo
CKD stages included1–5Serum creatinine >300 µmol/L in men and 250 µmol/L in womenb4–5 (eGFR dropping below 20 mL/min/1.73 m2)4–5 (since 2020 and 2019, respectively)51–54–5 (all centres include patients with eGFR dropping below 30 mL/min/1.73 m2; some centres include from 45 mL/min/1.73 m2)
CKD patients included
 Age rangeAdults onlyAdults onlyNoneAll agesAll agesAll agesAdults only
 N23485816None>2500161515 60147 804
 Per cent coverage of CKD patients treated by nephrologistsUnknown40NAUnknown65–85Unknown75%
Participating centres (n/N)10/3473/115None59/123326/2680/unknown47/48
Publication of annual reportsIn the futureYesIn the futureIn the futureYesYesYes
a

QI benchmarks: blood pressure (percentage <140/90 mm/Hg), phosphate (percentage <1.6 mmol/L), haemoglobin 10–12 g/dL if on erythropoiesis-stimulating agent, percentage diagnosed with PRD, percentage on angiotensin-converting enzyme inhibitor/angiotensin II recpetor blocker if diabetic kidney disease.

b

eGFR determined by the Chronic Kidney Diease Epidemiology Collaboration equation available for further distribution of CKD stages.

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