Characteristics of measures used to assess life participation in patients on PD (n = 42)
| Measure . | Response format . | Number of items . | Recall . | Cost . | Completion timea . | Specific to PD, KRT or CKD . | Frequency of use (number of studies) . |
|---|---|---|---|---|---|---|---|
| SF-36 [16] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | License fee upon request | 5–10 min | No | 122 |
| KDQOL-SF [17]b | Yes/no, 3‐/5‐/6‐/10‐point Likert scale, open‐ended response | 80 | Current, past 4 weeks | No charge | ~16 min | CKD | 86 |
| EQ-5D [18]c | ‘Indicate which statements best describe…’, VAS | 16 | Current | License fee upon request | <5 min | No | 27 |
| KDQOL-36 [19] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | ~10 min | CKD | 26 |
| SF-12 [20] | Yes/no, 3‐/5‐/6‐point Likert scale | 12 | Current, past 4 weeks | License fee upon request | ~2 min | No | 23 |
| WHOQOL- BREF [21] | 5-point Likert scale | 26 | Current, past 2 weeks | Contact World Health Organization | ~5 min | No | 21 |
| IIRS [22] | 7-point Likert scale | 13 | Current | Contact author | <15 min | No | 6 |
| NHP [23] | Yes/no | 45 | Current | Contact Galen Research | ~9 min | No | 5 |
| CHEQ [24] | Yes/no, 3-/5-/6-/7-point Likert scale, open-ended responses | 83 | Current, past 4 weeks | Contact author | ~16 min | KRT | 4 |
| 15D [25] | 5-point ordinal scale | 15 | Current | No charge | ~3 min | No | 3 |
| IEQ [26]d | 7-point Likert scale | 20 | Current | Contact author | ~4 min | No | 3 |
| SF-6D [27] | 4-/5-/6-point ordinal scale | 6 | Current | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | <2 min | No | 3 |
| HAP [28] | 3‐point ordinal scale: ‘still doing, have stopped doing, never did’ | 102 | Current | Contact author | 5–10 min | No | 3 |
| GHQ-28 [29] | 4-point Likert scale | 28 | Past few weeks | 5.50 AUD | ~5 min | No | 2 |
| PAQOL [30]d | Open-ended responses, 10-point Likert scale | 19 | Current | Contact author | ~4 min | No | 2 |
| SIP [31] | ‘Check those that apply’ | 136 | Current | Contact the Medical Outcomes Trust | 20–30 min | No | 2 |
| SWED-Qual [32] | 4-/5-/6-point Likert scale | 61 | Current, past week | Contact author | ~12 min | No | 2 |
| FACIT-Fatigue [33] | 5-point Likert scale | 13 | Past 7 days | No charge with study registration | 5–10 min | No | 2 |
| QLQ-C30 [34] | 4-/7-point Likert scale | 30 | Current, past week | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | ~6 min | No | 2 |
| RQLPd | 5-point Likert scale | 43 | Current | Contact author | 5–7 min | CKD | 1 |
| PASE [35] | 4-point Likert scale, open-ended responses, number of hours, yes/no, ‘which of the following categories best describes…’ | 10 | Past 7 days | Contact New England Research Institutes | 5–15 min | No | 1 |
| WPAI-GH [36] | Yes/no, number of hours, 11-point Likert scale | 6 | Current, past 7 days | Contact author | <2 min | No | 1 |
| KDQ [37]d | 7-point Likert scale | 26 | Past 2 weeks | Contact author | 10–15 min | CKD | 1 |
| GHQ-12 [29] | 4-point Likert scale | 12 | Past 4 weeks | 2.25 AUD | ~2 min | No | 1 |
| DUKE [38] | 3-point Likert scale, number of days | 17 | Current, past week | Contact author | ~3 min | No | 1 |
| HMQ [39] | Yes/no, 3-/4-/6-point ordinal scale, VAS, open-ended responses | 37 | Current, past 2 weeks | Contact author | <10 min | No | 1 |
| WHODAS II [40] | 5‐point Likert scale, number of days | 15 | Past 30 days | License fee upon request | ~5 min | No | 1 |
| IPAQ [41] | Yes/no, time spent on activities | 27 | Past 7 days | No charge | ~5 min | No | 1 |
| ICECAP-O [42] | 4-point Likert scale | 5 | Current | No charge with study registration | ~1 min | No | 1 |
| MHIQ [43]d | Yes/no, 3-/5-point Likert scale | 59 | Current | Contact author | ~20 min | No | 1 |
| PGWB [44] | 6‐point Likert scale | 22 | Past month | Contact author | <5 min | No | 1 |
| DRM [45] | 4-/5-/7-point Likert scale, percentage of time, open-ended responses, yes/no, ;check all that apply; | ≥110 | Current, yesterday | Contact author | 45–75 min | No | 1 |
| 9-THAI [46] | 5-point Likert scale | 9 | Past month, last year | Contact author | ~2 min | No | 1 |
| RAND-36 [47] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | 5–10 min | No | 1 |
| Author-developed measures (for own study, not validated) | |||||||
| Dąbrowska- Bender et al. [48]d | 10-point Likert scale | NA | NA | Contact author | NA | KRT | 1 |
| Devins et al. [49]d | Yes/no, number of hours per week | 5 | Past 7 days | Contact author | <2 min | CKD | 1 |
| Fernandes da Silvad | NA | NA | NA | Contact author | NA | KRT | 1 |
| Juergensen et al. [50] | 10-point Likert scale, open-ended responses | 20 | Current | Contact author | 10–15 min | KRT | 1 |
| Panagopouloud [51] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Szabod [52] | NA | NA | NA | Contact author | NA | NA | 1 |
| Tapsond [53] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Telld [54] | Yes/no | 1 | NA | Contact author | <1 min | CKD | 1 |
| Measure . | Response format . | Number of items . | Recall . | Cost . | Completion timea . | Specific to PD, KRT or CKD . | Frequency of use (number of studies) . |
|---|---|---|---|---|---|---|---|
| SF-36 [16] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | License fee upon request | 5–10 min | No | 122 |
| KDQOL-SF [17]b | Yes/no, 3‐/5‐/6‐/10‐point Likert scale, open‐ended response | 80 | Current, past 4 weeks | No charge | ~16 min | CKD | 86 |
| EQ-5D [18]c | ‘Indicate which statements best describe…’, VAS | 16 | Current | License fee upon request | <5 min | No | 27 |
| KDQOL-36 [19] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | ~10 min | CKD | 26 |
| SF-12 [20] | Yes/no, 3‐/5‐/6‐point Likert scale | 12 | Current, past 4 weeks | License fee upon request | ~2 min | No | 23 |
| WHOQOL- BREF [21] | 5-point Likert scale | 26 | Current, past 2 weeks | Contact World Health Organization | ~5 min | No | 21 |
| IIRS [22] | 7-point Likert scale | 13 | Current | Contact author | <15 min | No | 6 |
| NHP [23] | Yes/no | 45 | Current | Contact Galen Research | ~9 min | No | 5 |
| CHEQ [24] | Yes/no, 3-/5-/6-/7-point Likert scale, open-ended responses | 83 | Current, past 4 weeks | Contact author | ~16 min | KRT | 4 |
| 15D [25] | 5-point ordinal scale | 15 | Current | No charge | ~3 min | No | 3 |
| IEQ [26]d | 7-point Likert scale | 20 | Current | Contact author | ~4 min | No | 3 |
| SF-6D [27] | 4-/5-/6-point ordinal scale | 6 | Current | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | <2 min | No | 3 |
| HAP [28] | 3‐point ordinal scale: ‘still doing, have stopped doing, never did’ | 102 | Current | Contact author | 5–10 min | No | 3 |
| GHQ-28 [29] | 4-point Likert scale | 28 | Past few weeks | 5.50 AUD | ~5 min | No | 2 |
| PAQOL [30]d | Open-ended responses, 10-point Likert scale | 19 | Current | Contact author | ~4 min | No | 2 |
| SIP [31] | ‘Check those that apply’ | 136 | Current | Contact the Medical Outcomes Trust | 20–30 min | No | 2 |
| SWED-Qual [32] | 4-/5-/6-point Likert scale | 61 | Current, past week | Contact author | ~12 min | No | 2 |
| FACIT-Fatigue [33] | 5-point Likert scale | 13 | Past 7 days | No charge with study registration | 5–10 min | No | 2 |
| QLQ-C30 [34] | 4-/7-point Likert scale | 30 | Current, past week | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | ~6 min | No | 2 |
| RQLPd | 5-point Likert scale | 43 | Current | Contact author | 5–7 min | CKD | 1 |
| PASE [35] | 4-point Likert scale, open-ended responses, number of hours, yes/no, ‘which of the following categories best describes…’ | 10 | Past 7 days | Contact New England Research Institutes | 5–15 min | No | 1 |
| WPAI-GH [36] | Yes/no, number of hours, 11-point Likert scale | 6 | Current, past 7 days | Contact author | <2 min | No | 1 |
| KDQ [37]d | 7-point Likert scale | 26 | Past 2 weeks | Contact author | 10–15 min | CKD | 1 |
| GHQ-12 [29] | 4-point Likert scale | 12 | Past 4 weeks | 2.25 AUD | ~2 min | No | 1 |
| DUKE [38] | 3-point Likert scale, number of days | 17 | Current, past week | Contact author | ~3 min | No | 1 |
| HMQ [39] | Yes/no, 3-/4-/6-point ordinal scale, VAS, open-ended responses | 37 | Current, past 2 weeks | Contact author | <10 min | No | 1 |
| WHODAS II [40] | 5‐point Likert scale, number of days | 15 | Past 30 days | License fee upon request | ~5 min | No | 1 |
| IPAQ [41] | Yes/no, time spent on activities | 27 | Past 7 days | No charge | ~5 min | No | 1 |
| ICECAP-O [42] | 4-point Likert scale | 5 | Current | No charge with study registration | ~1 min | No | 1 |
| MHIQ [43]d | Yes/no, 3-/5-point Likert scale | 59 | Current | Contact author | ~20 min | No | 1 |
| PGWB [44] | 6‐point Likert scale | 22 | Past month | Contact author | <5 min | No | 1 |
| DRM [45] | 4-/5-/7-point Likert scale, percentage of time, open-ended responses, yes/no, ;check all that apply; | ≥110 | Current, yesterday | Contact author | 45–75 min | No | 1 |
| 9-THAI [46] | 5-point Likert scale | 9 | Past month, last year | Contact author | ~2 min | No | 1 |
| RAND-36 [47] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | 5–10 min | No | 1 |
| Author-developed measures (for own study, not validated) | |||||||
| Dąbrowska- Bender et al. [48]d | 10-point Likert scale | NA | NA | Contact author | NA | KRT | 1 |
| Devins et al. [49]d | Yes/no, number of hours per week | 5 | Past 7 days | Contact author | <2 min | CKD | 1 |
| Fernandes da Silvad | NA | NA | NA | Contact author | NA | KRT | 1 |
| Juergensen et al. [50] | 10-point Likert scale, open-ended responses | 20 | Current | Contact author | 10–15 min | KRT | 1 |
| Panagopouloud [51] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Szabod [52] | NA | NA | NA | Contact author | NA | NA | 1 |
| Tapsond [53] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Telld [54] | Yes/no | 1 | NA | Contact author | <1 min | CKD | 1 |
Where data on completion time were unavailable, authors estimated based on ~12 s/item.
Studies used versions 1.1, 1.2 or 1.3.
Some studies used EQ-5D-5L and others used EQ-5D-3L.
Could not retrieve measure in full.
KRT: kidney replacement therapy; IIRS: Illness Intrusiveness Ratings Scale; NHP: Nottingham Health Profile; 15 D: 15 dimensions; IEQ: Illness Effects Questionnaire; GHQ-28: General Health Questionnaire 28-item; HAP: Human Activity Profile; PAQOL: patient-assessed quality of life; SIP: Sickness Impact Profile; RQLP: Renal Quality of Life Profile; PASE: Physical Activity Scale for the Elderly; WPAI-GH: Work Productivity and Activity Impairment General Health; KDQ: Kidney Disease Questionnaire; GHQ-12: 12-item General Health Questionnaire; DUKE: Duke Health Profile; HMQ: Health Measurement Questionnaire; WHODAS II: World Health Organization Disability Assessment Schedule 2.0; IPAQ: International Physical Activity Questionnaire; QLQ-C30: Quality of Life Questionnaire; MHIQ: McMaster Health Index Questionnaire; PGWB: Psychological General Well-Being Index; DRM: Day Reconstruction Method; FACIT: Fatigue, Functional Assessment of Chronic Illness Therapy—fatigue scale; SWED-Qual: Swedish Health-Related Quality of Life Survey.
Characteristics of measures used to assess life participation in patients on PD (n = 42)
| Measure . | Response format . | Number of items . | Recall . | Cost . | Completion timea . | Specific to PD, KRT or CKD . | Frequency of use (number of studies) . |
|---|---|---|---|---|---|---|---|
| SF-36 [16] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | License fee upon request | 5–10 min | No | 122 |
| KDQOL-SF [17]b | Yes/no, 3‐/5‐/6‐/10‐point Likert scale, open‐ended response | 80 | Current, past 4 weeks | No charge | ~16 min | CKD | 86 |
| EQ-5D [18]c | ‘Indicate which statements best describe…’, VAS | 16 | Current | License fee upon request | <5 min | No | 27 |
| KDQOL-36 [19] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | ~10 min | CKD | 26 |
| SF-12 [20] | Yes/no, 3‐/5‐/6‐point Likert scale | 12 | Current, past 4 weeks | License fee upon request | ~2 min | No | 23 |
| WHOQOL- BREF [21] | 5-point Likert scale | 26 | Current, past 2 weeks | Contact World Health Organization | ~5 min | No | 21 |
| IIRS [22] | 7-point Likert scale | 13 | Current | Contact author | <15 min | No | 6 |
| NHP [23] | Yes/no | 45 | Current | Contact Galen Research | ~9 min | No | 5 |
| CHEQ [24] | Yes/no, 3-/5-/6-/7-point Likert scale, open-ended responses | 83 | Current, past 4 weeks | Contact author | ~16 min | KRT | 4 |
| 15D [25] | 5-point ordinal scale | 15 | Current | No charge | ~3 min | No | 3 |
| IEQ [26]d | 7-point Likert scale | 20 | Current | Contact author | ~4 min | No | 3 |
| SF-6D [27] | 4-/5-/6-point ordinal scale | 6 | Current | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | <2 min | No | 3 |
| HAP [28] | 3‐point ordinal scale: ‘still doing, have stopped doing, never did’ | 102 | Current | Contact author | 5–10 min | No | 3 |
| GHQ-28 [29] | 4-point Likert scale | 28 | Past few weeks | 5.50 AUD | ~5 min | No | 2 |
| PAQOL [30]d | Open-ended responses, 10-point Likert scale | 19 | Current | Contact author | ~4 min | No | 2 |
| SIP [31] | ‘Check those that apply’ | 136 | Current | Contact the Medical Outcomes Trust | 20–30 min | No | 2 |
| SWED-Qual [32] | 4-/5-/6-point Likert scale | 61 | Current, past week | Contact author | ~12 min | No | 2 |
| FACIT-Fatigue [33] | 5-point Likert scale | 13 | Past 7 days | No charge with study registration | 5–10 min | No | 2 |
| QLQ-C30 [34] | 4-/7-point Likert scale | 30 | Current, past week | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | ~6 min | No | 2 |
| RQLPd | 5-point Likert scale | 43 | Current | Contact author | 5–7 min | CKD | 1 |
| PASE [35] | 4-point Likert scale, open-ended responses, number of hours, yes/no, ‘which of the following categories best describes…’ | 10 | Past 7 days | Contact New England Research Institutes | 5–15 min | No | 1 |
| WPAI-GH [36] | Yes/no, number of hours, 11-point Likert scale | 6 | Current, past 7 days | Contact author | <2 min | No | 1 |
| KDQ [37]d | 7-point Likert scale | 26 | Past 2 weeks | Contact author | 10–15 min | CKD | 1 |
| GHQ-12 [29] | 4-point Likert scale | 12 | Past 4 weeks | 2.25 AUD | ~2 min | No | 1 |
| DUKE [38] | 3-point Likert scale, number of days | 17 | Current, past week | Contact author | ~3 min | No | 1 |
| HMQ [39] | Yes/no, 3-/4-/6-point ordinal scale, VAS, open-ended responses | 37 | Current, past 2 weeks | Contact author | <10 min | No | 1 |
| WHODAS II [40] | 5‐point Likert scale, number of days | 15 | Past 30 days | License fee upon request | ~5 min | No | 1 |
| IPAQ [41] | Yes/no, time spent on activities | 27 | Past 7 days | No charge | ~5 min | No | 1 |
| ICECAP-O [42] | 4-point Likert scale | 5 | Current | No charge with study registration | ~1 min | No | 1 |
| MHIQ [43]d | Yes/no, 3-/5-point Likert scale | 59 | Current | Contact author | ~20 min | No | 1 |
| PGWB [44] | 6‐point Likert scale | 22 | Past month | Contact author | <5 min | No | 1 |
| DRM [45] | 4-/5-/7-point Likert scale, percentage of time, open-ended responses, yes/no, ;check all that apply; | ≥110 | Current, yesterday | Contact author | 45–75 min | No | 1 |
| 9-THAI [46] | 5-point Likert scale | 9 | Past month, last year | Contact author | ~2 min | No | 1 |
| RAND-36 [47] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | 5–10 min | No | 1 |
| Author-developed measures (for own study, not validated) | |||||||
| Dąbrowska- Bender et al. [48]d | 10-point Likert scale | NA | NA | Contact author | NA | KRT | 1 |
| Devins et al. [49]d | Yes/no, number of hours per week | 5 | Past 7 days | Contact author | <2 min | CKD | 1 |
| Fernandes da Silvad | NA | NA | NA | Contact author | NA | KRT | 1 |
| Juergensen et al. [50] | 10-point Likert scale, open-ended responses | 20 | Current | Contact author | 10–15 min | KRT | 1 |
| Panagopouloud [51] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Szabod [52] | NA | NA | NA | Contact author | NA | NA | 1 |
| Tapsond [53] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Telld [54] | Yes/no | 1 | NA | Contact author | <1 min | CKD | 1 |
| Measure . | Response format . | Number of items . | Recall . | Cost . | Completion timea . | Specific to PD, KRT or CKD . | Frequency of use (number of studies) . |
|---|---|---|---|---|---|---|---|
| SF-36 [16] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | License fee upon request | 5–10 min | No | 122 |
| KDQOL-SF [17]b | Yes/no, 3‐/5‐/6‐/10‐point Likert scale, open‐ended response | 80 | Current, past 4 weeks | No charge | ~16 min | CKD | 86 |
| EQ-5D [18]c | ‘Indicate which statements best describe…’, VAS | 16 | Current | License fee upon request | <5 min | No | 27 |
| KDQOL-36 [19] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | ~10 min | CKD | 26 |
| SF-12 [20] | Yes/no, 3‐/5‐/6‐point Likert scale | 12 | Current, past 4 weeks | License fee upon request | ~2 min | No | 23 |
| WHOQOL- BREF [21] | 5-point Likert scale | 26 | Current, past 2 weeks | Contact World Health Organization | ~5 min | No | 21 |
| IIRS [22] | 7-point Likert scale | 13 | Current | Contact author | <15 min | No | 6 |
| NHP [23] | Yes/no | 45 | Current | Contact Galen Research | ~9 min | No | 5 |
| CHEQ [24] | Yes/no, 3-/5-/6-/7-point Likert scale, open-ended responses | 83 | Current, past 4 weeks | Contact author | ~16 min | KRT | 4 |
| 15D [25] | 5-point ordinal scale | 15 | Current | No charge | ~3 min | No | 3 |
| IEQ [26]d | 7-point Likert scale | 20 | Current | Contact author | ~4 min | No | 3 |
| SF-6D [27] | 4-/5-/6-point ordinal scale | 6 | Current | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | <2 min | No | 3 |
| HAP [28] | 3‐point ordinal scale: ‘still doing, have stopped doing, never did’ | 102 | Current | Contact author | 5–10 min | No | 3 |
| GHQ-28 [29] | 4-point Likert scale | 28 | Past few weeks | 5.50 AUD | ~5 min | No | 2 |
| PAQOL [30]d | Open-ended responses, 10-point Likert scale | 19 | Current | Contact author | ~4 min | No | 2 |
| SIP [31] | ‘Check those that apply’ | 136 | Current | Contact the Medical Outcomes Trust | 20–30 min | No | 2 |
| SWED-Qual [32] | 4-/5-/6-point Likert scale | 61 | Current, past week | Contact author | ~12 min | No | 2 |
| FACIT-Fatigue [33] | 5-point Likert scale | 13 | Past 7 days | No charge with study registration | 5–10 min | No | 2 |
| QLQ-C30 [34] | 4-/7-point Likert scale | 30 | Current, past week | No charge for academic/noncommercial use with study registration. License fee for commercial use upon request. | ~6 min | No | 2 |
| RQLPd | 5-point Likert scale | 43 | Current | Contact author | 5–7 min | CKD | 1 |
| PASE [35] | 4-point Likert scale, open-ended responses, number of hours, yes/no, ‘which of the following categories best describes…’ | 10 | Past 7 days | Contact New England Research Institutes | 5–15 min | No | 1 |
| WPAI-GH [36] | Yes/no, number of hours, 11-point Likert scale | 6 | Current, past 7 days | Contact author | <2 min | No | 1 |
| KDQ [37]d | 7-point Likert scale | 26 | Past 2 weeks | Contact author | 10–15 min | CKD | 1 |
| GHQ-12 [29] | 4-point Likert scale | 12 | Past 4 weeks | 2.25 AUD | ~2 min | No | 1 |
| DUKE [38] | 3-point Likert scale, number of days | 17 | Current, past week | Contact author | ~3 min | No | 1 |
| HMQ [39] | Yes/no, 3-/4-/6-point ordinal scale, VAS, open-ended responses | 37 | Current, past 2 weeks | Contact author | <10 min | No | 1 |
| WHODAS II [40] | 5‐point Likert scale, number of days | 15 | Past 30 days | License fee upon request | ~5 min | No | 1 |
| IPAQ [41] | Yes/no, time spent on activities | 27 | Past 7 days | No charge | ~5 min | No | 1 |
| ICECAP-O [42] | 4-point Likert scale | 5 | Current | No charge with study registration | ~1 min | No | 1 |
| MHIQ [43]d | Yes/no, 3-/5-point Likert scale | 59 | Current | Contact author | ~20 min | No | 1 |
| PGWB [44] | 6‐point Likert scale | 22 | Past month | Contact author | <5 min | No | 1 |
| DRM [45] | 4-/5-/7-point Likert scale, percentage of time, open-ended responses, yes/no, ;check all that apply; | ≥110 | Current, yesterday | Contact author | 45–75 min | No | 1 |
| 9-THAI [46] | 5-point Likert scale | 9 | Past month, last year | Contact author | ~2 min | No | 1 |
| RAND-36 [47] | Yes/no, 3‐/5‐/6‐point Likert scale | 36 | Current, past 4 weeks | No charge | 5–10 min | No | 1 |
| Author-developed measures (for own study, not validated) | |||||||
| Dąbrowska- Bender et al. [48]d | 10-point Likert scale | NA | NA | Contact author | NA | KRT | 1 |
| Devins et al. [49]d | Yes/no, number of hours per week | 5 | Past 7 days | Contact author | <2 min | CKD | 1 |
| Fernandes da Silvad | NA | NA | NA | Contact author | NA | KRT | 1 |
| Juergensen et al. [50] | 10-point Likert scale, open-ended responses | 20 | Current | Contact author | 10–15 min | KRT | 1 |
| Panagopouloud [51] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Szabod [52] | NA | NA | NA | Contact author | NA | NA | 1 |
| Tapsond [53] | NA | NA | NA | Contact author | NA | KRT | 1 |
| Telld [54] | Yes/no | 1 | NA | Contact author | <1 min | CKD | 1 |
Where data on completion time were unavailable, authors estimated based on ~12 s/item.
Studies used versions 1.1, 1.2 or 1.3.
Some studies used EQ-5D-5L and others used EQ-5D-3L.
Could not retrieve measure in full.
KRT: kidney replacement therapy; IIRS: Illness Intrusiveness Ratings Scale; NHP: Nottingham Health Profile; 15 D: 15 dimensions; IEQ: Illness Effects Questionnaire; GHQ-28: General Health Questionnaire 28-item; HAP: Human Activity Profile; PAQOL: patient-assessed quality of life; SIP: Sickness Impact Profile; RQLP: Renal Quality of Life Profile; PASE: Physical Activity Scale for the Elderly; WPAI-GH: Work Productivity and Activity Impairment General Health; KDQ: Kidney Disease Questionnaire; GHQ-12: 12-item General Health Questionnaire; DUKE: Duke Health Profile; HMQ: Health Measurement Questionnaire; WHODAS II: World Health Organization Disability Assessment Schedule 2.0; IPAQ: International Physical Activity Questionnaire; QLQ-C30: Quality of Life Questionnaire; MHIQ: McMaster Health Index Questionnaire; PGWB: Psychological General Well-Being Index; DRM: Day Reconstruction Method; FACIT: Fatigue, Functional Assessment of Chronic Illness Therapy—fatigue scale; SWED-Qual: Swedish Health-Related Quality of Life Survey.
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