Table I.
Open in new tab

Demographic Information of Focus Groups and Interviews

Caregivers (n = 16), n (%)Patients (n = 11a), n (%)
Gender
 Male6 (37.5)6 (54.5)
 Female10 (62.5)5 (45.5)
Age (years)
 0–96 (54.5)
 10–185 (45.5)
 18–291 (6.2)
 30–397 (43.8)
 40–495 (31.3)
 50–593 (18.8)
Ethnicity
 Non-Hispanic or non-Latino13 (81.3)9 (81.8)
 Hispanic or Latino3 (18.8)2 (18.2)
Race
 White8 (50.0)5 (45.5)
 African-American4 (25.0)3 (27.3)
 Asian1 (6.2)1 (9.0)
 Other3 (18.8)2 (18.2)
Marital statusb
 Single1 (6.2)
 Married/partnered15 (93.8)
Education levelb
 Finished high school/got GED4 (26.6)
 Started college or trade school4 (26.6)
 Finished college or trade school5 (33.3)
 Finished master’s or doctoral program2 (12.5)
Annual household incomeb
 Less than 24,5994 (26.6)
 25,000 to 49,9991 (6.6)
 75,000 to 99,9996 (40.0)
 150,000 or more4 (26.7)
Child diagnosis
 Solid tumor4 (36.3)
 Leukemia/lymphoma5 (45.5)
 Brain tumor2 (18.2)
Child treatment status
 Active treatment5 (45.5)
 Remission/off treatment complete6 (54.5)
Caregivers (n = 16), n (%)Patients (n = 11a), n (%)
Gender
 Male6 (37.5)6 (54.5)
 Female10 (62.5)5 (45.5)
Age (years)
 0–96 (54.5)
 10–185 (45.5)
 18–291 (6.2)
 30–397 (43.8)
 40–495 (31.3)
 50–593 (18.8)
Ethnicity
 Non-Hispanic or non-Latino13 (81.3)9 (81.8)
 Hispanic or Latino3 (18.8)2 (18.2)
Race
 White8 (50.0)5 (45.5)
 African-American4 (25.0)3 (27.3)
 Asian1 (6.2)1 (9.0)
 Other3 (18.8)2 (18.2)
Marital statusb
 Single1 (6.2)
 Married/partnered15 (93.8)
Education levelb
 Finished high school/got GED4 (26.6)
 Started college or trade school4 (26.6)
 Finished college or trade school5 (33.3)
 Finished master’s or doctoral program2 (12.5)
Annual household incomeb
 Less than 24,5994 (26.6)
 25,000 to 49,9991 (6.6)
 75,000 to 99,9996 (40.0)
 150,000 or more4 (26.7)
Child diagnosis
 Solid tumor4 (36.3)
 Leukemia/lymphoma5 (45.5)
 Brain tumor2 (18.2)
Child treatment status
 Active treatment5 (45.5)
 Remission/off treatment complete6 (54.5)
a

Five families had two caregivers participate in a focus group or interview.

b

Missing data from one caregiver.

Table I.
Open in new tab

Demographic Information of Focus Groups and Interviews

Caregivers (n = 16), n (%)Patients (n = 11a), n (%)
Gender
 Male6 (37.5)6 (54.5)
 Female10 (62.5)5 (45.5)
Age (years)
 0–96 (54.5)
 10–185 (45.5)
 18–291 (6.2)
 30–397 (43.8)
 40–495 (31.3)
 50–593 (18.8)
Ethnicity
 Non-Hispanic or non-Latino13 (81.3)9 (81.8)
 Hispanic or Latino3 (18.8)2 (18.2)
Race
 White8 (50.0)5 (45.5)
 African-American4 (25.0)3 (27.3)
 Asian1 (6.2)1 (9.0)
 Other3 (18.8)2 (18.2)
Marital statusb
 Single1 (6.2)
 Married/partnered15 (93.8)
Education levelb
 Finished high school/got GED4 (26.6)
 Started college or trade school4 (26.6)
 Finished college or trade school5 (33.3)
 Finished master’s or doctoral program2 (12.5)
Annual household incomeb
 Less than 24,5994 (26.6)
 25,000 to 49,9991 (6.6)
 75,000 to 99,9996 (40.0)
 150,000 or more4 (26.7)
Child diagnosis
 Solid tumor4 (36.3)
 Leukemia/lymphoma5 (45.5)
 Brain tumor2 (18.2)
Child treatment status
 Active treatment5 (45.5)
 Remission/off treatment complete6 (54.5)
Caregivers (n = 16), n (%)Patients (n = 11a), n (%)
Gender
 Male6 (37.5)6 (54.5)
 Female10 (62.5)5 (45.5)
Age (years)
 0–96 (54.5)
 10–185 (45.5)
 18–291 (6.2)
 30–397 (43.8)
 40–495 (31.3)
 50–593 (18.8)
Ethnicity
 Non-Hispanic or non-Latino13 (81.3)9 (81.8)
 Hispanic or Latino3 (18.8)2 (18.2)
Race
 White8 (50.0)5 (45.5)
 African-American4 (25.0)3 (27.3)
 Asian1 (6.2)1 (9.0)
 Other3 (18.8)2 (18.2)
Marital statusb
 Single1 (6.2)
 Married/partnered15 (93.8)
Education levelb
 Finished high school/got GED4 (26.6)
 Started college or trade school4 (26.6)
 Finished college or trade school5 (33.3)
 Finished master’s or doctoral program2 (12.5)
Annual household incomeb
 Less than 24,5994 (26.6)
 25,000 to 49,9991 (6.6)
 75,000 to 99,9996 (40.0)
 150,000 or more4 (26.7)
Child diagnosis
 Solid tumor4 (36.3)
 Leukemia/lymphoma5 (45.5)
 Brain tumor2 (18.2)
Child treatment status
 Active treatment5 (45.5)
 Remission/off treatment complete6 (54.5)
a

Five families had two caregivers participate in a focus group or interview.

b

Missing data from one caregiver.

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