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Keywords: genetic privacy
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Journal Article
Four misconceptions about investigative genetic genealogy
Christi J Guerrini and others
Journal of Law and the Biosciences, Volume 8, Issue 1, January-June 2021, lsab001, https://doi.org/10.1093/jlb/lsab001
Published: 13 April 2021
... discussions. Fourth Amendment forensic genetic databases genetic genealogy genetic privacy Investigative genetic genealogy (IGG) is a new technique for identifying criminal suspects that has sparked controversy. The process of IGG involves uploading a crime scene DNA profile to one or more genetic...
Journal Article
HIGHLIGHTED ARTICLE
Private Genomes and Public SNPs: Homomorphic Encryption of Genotypes and Phenotypes for Shared Quantitative Genetics
Richard Mott and others
in
Genetics
Genetics, Volume 215, Issue 2, 1 June 2020, Pages 359–372, https://doi.org/10.1534/genetics.120.303153
Published: 01 June 2020
...10.13039/100000026 P30 DA-044223 quantitative genetics homomorphic encryption genetic privacy Abstract Mott et al. show that association between a quantitative trait and genotype can be performed using data that has been transformed by first rotating it in a high-dimensional...
Journal Article
Trends in Forensic DNA Database: Transnational Exchange of DNA Data
Aaron Opoku Amankwaa
Forensic Sciences Research, Volume 5, Issue 1, March 2020, Pages 8–14, https://doi.org/10.1080/20961790.2019.1565651
Published: 07 February 2019
... the full potential of the DNA data exchange system. Forensic DNA exchange Prüm forensic DNA legislation genetic privacy proportionality social security Northumbria University Research Studentship. With the increase in cross-border crime, the international exchange of intelligence for policing...
Journal Article
Public preferences and the challenge to genetic research policy
Rebecca Dresser
Journal of Law and the Biosciences, Volume 1, Issue 1, March 2014, Pages 52–67, https://doi.org/10.1093/jlb/lst001
Published: 04 February 2014
... is conducted. genetic privacy genetic research ethics genetic research policy human subjects informed consent research participants Professionals have traditionally controlled decisions about the ethics of human research. Until recently, the accepted view was that the ethical principles and practices...
Chapter
Introduction
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Dara Hallinan
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0001 This introductory chapter provides an overview of the protection of genetic privacy in biobanking. The fact...
Chapter
A Critical Analysis of the Efficacy of the GDPR as a Framework for the Protection of Genetic Privacy in Biobanking
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Dara Hallinan
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0010 This chapter presents a critical analysis of the efficacy of the General Data Protection Regulation (GDPR...
Book
Silent Witness: Forensic DNA Evidence in Criminal Investigations and Humanitarian Disasters
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Henry Erlich (ed.) and others
Published online: 19 November 2020
Published in print: 18 November 2020
..., genetic privacy has few, if any, applicable legal doctrines or enactments [that] provide adequate protection or meaningful control to individuals over disclosures that may affect them (Clayton et al., 2019). Today, DNA analysis is extolled as the gold standard for forensic evidence (Saks & Koehler...
Chapter
Genetics and the Law: United States
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Maxwell Mehlman and Sonia Suter
Published: 13 January 2021
... agencies also play a role, for example, in protecting genetic privacy or regulating genetic tests. Finally, the US Constitution is relevant to genomics, especially concerning reproductive rights, which are pertinent to reproductive genetic testing. genetic testing genetic privacy pregnancy abortion...
Chapter
Genetics
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Daniel B. Sinclair
Published: 02 October 2003
...This chapter sketches an outline of a general halakhic approach to modern genetics and addresses a number of issues in somewhat greater detail. These issues include the abortion of genetically defective foetuses, the preservation of genetic privacy, the theological issue of genetic determinism...
Chapter
Individual Human Rights in Genetic Research: Blurring the Line between Collective and Individual Interests
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Hélène Boussard
Published: 22 January 2009
...This chapter describes how international human rights law has expanded in reaction to the growth of genetic health practices. It emphasizes that the so-called ‘geneticization’ of rights — that is, the proliferating references to the right to genetic identity, the right to genetic privacy...
Book
Published online: 22 April 2021
Published in print: 11 March 2021
..., and as to which privacy rights holders are engaged by research: questions of genetic privacy. For example, previously, discussion of privacy in research had focused on questions of bodily privacy and the restriction of third-p arty access to research subject data. Yet, the deep interrogation of a genome can...
Chapter
Forensic Genetics, Ethics, Privacy, and Public Policy
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Thomas J. White and Steven B. Lee
Published: 18 November 2020
... ). The law of genetic privacy: Applications, implications and limitations. Journal of Law & Biosciences , 96 , 1–36. Claes, P. , et al. ( 2018 ). Genome-wide mapping of global-to-local genetic effects on human facial shape. Nature Genetics ...
Chapter
Privacy
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Ronald M Baecker
Published: 24 April 2019
... recognition genetic privacy intimacy lifelogging medium F ears about loss of privacy in computerized societies have been central to dystopian literature. The issue has also concerned thoughtful computer scientists and lawyers since the 1960s. By then, the scope of the computer revolution...
Chapter
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0004 This chapter evaluates the concept of genetic privacy and its relationship with biobanking. Genetic privacy...
Chapter
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0005 This chapter sketches a baseline level of protection for genetic privacy rights in biobanking, against which...
Chapter
Gender and Surveillance in Margaret Atwood’s Novels, from Bodily Harm (1981) to The Testaments (2019)
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Claire Wrobel and Claire Wrobel
Published: 30 April 2023
... grotesque internet Eggers Dave science fiction speculative fiction gender surveillance literature genetic privacy biometrics gaze dataveillance surveillance capitalism Margaret Atwood Surveillance, as has been forcefully demonstrated in earlier chapters, does not apply indiscriminately...
Chapter
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0006 This chapter assesses whether there is any need to consider European data protection law as a framework...
Chapter
Testing the GDPR in Relation to Biobanking: When Does the GDPR Apply to Biobanking?
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Dara Hallinan
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0007 This chapter looks at when the General Data Protection Regulation (GDPR) applies, rationae materiae...
Chapter
Conclusion
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Dara Hallinan
Published: 11 March 2021
...Protecting Genetic Privacy in Biobanking through Data Protection Law . Dara Hallinan, Oxford University Press (2021).
© Dara Hallinan. DOI: 10.1093/oso/9780192896476.003.0011 This concluding chapter argues that European data protection law, under the General Data Protection...
Chapter
The International Law of Genetic Discrimination: The Power of ‘Never Again’
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Iulia Voina Motoc
Published: 22 January 2009
...This chapter examines genetic discrimination through the lens of international law. The main questions asked are: What is the meaning of genetic discrimination? How can laws on genetic privacy prevent discrimination? What is the relationship between international and domestic law in fields...
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