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Save My Kid: How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System

Online ISBN:
9781479834327
Print ISBN:
9781479863938
Publisher:
NYU Press
Book

Save My Kid: How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System

Amanda M. Gengler
Amanda M. Gengler
Wake Forest University
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Published online:
17 September 2020
Published in print:
21 January 2020
Online ISBN:
9781479834327
Print ISBN:
9781479863938
Publisher:
NYU Press

Abstract

In “Save My Kid,” sociologist Amanda Gengler examines how families of critically ill children navigate the US healthcare system. Not all families are equipped with resources for critically ill kids, but the toolkits that are available to them shape their approach to seeking care and negotiating the treatment process, as well as their ability to maintain some degree of emotional stability in the midst of profound distress. ”Save My Kid” uncovers the powerful role emotional goals—deeply rooted in the emotional culture around illness and medicine in the United States—can play in driving medical decisions, healthcare interactions, and the end of children’s lives if and when they come. This book draws out the often unrecognized, everyday inequalities that unfold throughout the illness experience while shedding important light on the emotional foundations on which they rest.

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