MP623
MEASURING WELLBEING IN KIDNEY PATIENTS: HOW DO WE DO THAT? Free

Introduction and Aims: Kidney patients find it very hard to put in words how they experience the different stages of their disease. It is very difficult to say how they were feeling at the last appointment with their nephrologist. The aim was to give patients knowledge and insight in the progression of their disease.

Methods: A measuring-instrument (NCCN2003/IKA2006) known as the lastmeter in oncology was altered to fit the symptoms of kidney patients. The measuring instrument is named the welbevindenmeter, and is an instrument to measure the wellbeing or quality of life for kidney patients. During a home-visit from the social worker of the nephrology department will bring the questions asked in the welbevindenmeter. It is not a form that has to be filled out by the patient, the questions are asked in a conversation with the social worker. The welbevindenmeter will be filled out on different occasions. When patients start the kidney failure trajectory, three months after starting the trajectory, when their social situation changes, when they start with a treatment, or when the treatment changes. When changes not occur, the welbevindenmeter will be discussed yearly.

Results: In 2013 118 patients have answered the questions of the welbevindenmeter. 80% is seriously tired 50% experience less daily functioning. 40% experience sadness/grief 27% give their wellbeing inadequate. In 2014 the welbevindenmeter is used 113 times for 110 new patients in the kidney failure trajectory. 54% of them experience pain 85% of the patients are seriously tired 66 % worry Also in 2014 47 welbevindenmeters are conducted with patients already on dialysis. 57% of them experience pain 70% is seriously tired 43% worry

Conclusions: With the welbevindenmeter patients get more control on their medical situation and wellbeing. It provides information to the patient and to practitioners about the condition of the patient. It’s is a possible starting point for a custom made treatment plan what enhances the quality of care for chronic kidney patients.