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Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement, 2nd Edn (2nd edn)

Online ISBN:
9780191730368
Print ISBN:
9780199212934
Publisher:
Oxford University Press
Book

Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement, 2nd Edn (2nd edn)

David Oliver (ed.),
David Oliver
(ed.)

Consultant Physician in Palliative Medicine, Wisdom Hospice; Honorary Senior Lecturer at the Kent Institute of Medicine and Health Sciences

Consultant Physician in Palliative Medicine, Wisdom Hospice; Honorary Senior Lecturer at the Kent Institute of Medicine and Health Sciences, University of Kent, UK
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Gian Domenico Borasio (ed.),
Gian Domenico Borasio
(ed.)

Professor and Acting Chairman

Professor and Acting Chairman, Interdisciplinary Center for Palliative Medicine; Head, Motor Neurone Disease Research Group, Department of Neurology, University of Munich, Germany
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Declan Walsh (ed.)
Declan Walsh
(ed.)

Professor and Director

Professor and Director, The Harry R Horvitz Center for Palliative Medicine, Cleveland Clinic, USA
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Published online:
17 November 2011
Published in print:
9 November 2006
Online ISBN:
9780191730368
Print ISBN:
9780199212934
Publisher:
Oxford University Press

A newer edition of this book is available.

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Abstract

Amyotrophic lateral sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. This book reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this second edition of the text utilises the increase in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care are included in this edition.

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