Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement, 2nd Edn (2nd edn)
Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement, 2nd Edn (2nd edn)
Consultant Physician in Palliative Medicine, Wisdom Hospice; Honorary Senior Lecturer at the Kent Institute of Medicine and Health Sciences
Professor and Acting Chairman
Professor and Director
Cite
Abstract
Amyotrophic lateral sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. This book reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this second edition of the text utilises the increase in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care are included in this edition.
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Front Matter
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1
Amyotrophic Lateral Sclerosis/Motor Neuron Disease
Christopher Shaw
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2
Palliative Care
David Oliver
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3a
Communication: Breaking the News
Richard Sloan and others
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3b
Decision Making
Wendy Johnston
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3c
Advance Directives
Gian Domenico Borasio andRaymond Voltz
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4a
Control of Symptoms: Dyspnoea and Respiratory Symptoms
Rebecca Lyall andDeborah Gelinas
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4b
Control of Symptoms: Dysphagia
Edith Wagner-Sonntag andMario Prosiegel
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4c
Control of Symptoms: Cognitive Dysfunction
Laura Goldstein
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4d
Control of Symptoms: Other Symptoms (including depression)
Gian Domenico Borasio andDavid Oliver
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5
Psychosocial Care
Donal Gallagher andBarbara Monroe
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6
Spiritual Care
Robert Lambert
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7a
Multidisciplinary Care: Physiotherapy
Ulrike Hammerbeck andAlison Garrett
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7b
Multidisciplinary Care: Occupational Therapy
Chris Kingsnorth
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7c
Multidisciplinary Care: Speech and Language Therapy
Amanda Scott andMaryanne McPhee
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7d
Multidisciplinary Care: Psychology
Jos Kerkvliet
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7e
Multidisciplinary Care: Nursing Care
Dallas Forshew
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8
International Aspects of Care
David Oliver
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9a
End of life Care: Ethical Issues
Leo Mccluskey andLauren Elman
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9b
End of life Care
Nigel Sykes
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10
Bereavement
Ann Mcmurray andAmanda Harris
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11a
Personal Experiences
Linda Centers
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11b
Personal Experiences
Phil Hankins
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End Matter
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